Back in 2013 we conducted a survey to understand the needs of women affected by fibroids. As we conducted this survey, we kept hearing very strong words and phrases describing how living with fibroids was affecting the mental health of women.

“I have hated life at times because of fibroids. I feel like I am being punished for something.”

“Depression from feeling that my only options were drugs or surgery”

“Fear of not being able to have children”

“Just a constant fear of what they could become”

As a result of this we started to explore this issue further by speaking to women who attended our fibroids awareness events and soon realised that this was a much wider problem. To compound this issue there was little information available, at the time, about the emotional impact of fibroids and no services to support women with fibroids in addressing these issues.

So, we decided to reach out to counsellor, Olivia Haltman, the founder of OH Services to speak at our Fibroid Focus event, a conference we held in 2016 for women with fibroids.

Olivia gave an excellent presentation that explored the emotional impact of fibroids explaining how fibroids can affect not just women’s physical health but their mental health too. The reaction from women after her presentation was profound, a stunned recognition that:

• Other women feel the way I do
• What I have been feeling isn’t trivial
• Someone articulated exactly how I was feeling in a way that I never could
• There is a way to address this aspect of my experience with fibroids

Following this event OH Services began work on developing their first 4-week online course on the emotional impact of fibroids. Not only was it a first for them but, to our knowledge, it is the first ever course on this topic. This course was launched in November 2018 and we had the pleasure of attending.

Over the 4 weeks OH Services created a safe space for women to come together to discuss the emotional impact of fibroids. As we listened to the discussion, we realised this was the first time that attendees were exploring this side of fibroids, and it was challenging. They were given the opportunity to reflect and explore their emotions and how these have been impacted by their experience with fibroids.

Ms Haltman explained with some clarity what specific emotions many women feel categorising them into the emotions that women may experience before and after a diagnosis, as well as some general emotions.

We learnt of the fear, anxiety and uncertainty that can occur in the lead up to a diagnosis which is particularly significant as many women with fibroids have symptoms weeks, months and sometimes years before receiving a confirmed diagnosis.

We also learnt of the emotional toll that managing symptoms such as pain, heavy bleeding and anaemia can have on a woman’s quality of life, affecting her personality, relationships, effectiveness at work and restricting the activities she can participate in.

Ms Haltman also described the difficulty of having to deal with treatment decisions, the potential of  a loss of fertility and the possibility of a recurrence after treatment.

The discussions during this course were insightful and thought-provoking and to ensure that participants made the most of each session, participants were given activities after each session to consolidate their learning.

The course ended on a positive note, one of hope and sisterhood with Ms Haltman taking participants through methods and techniques to address these emotions and start a self-development journey.

We really liked that the way this course was delivered. It was interactive and practical with participants being split up into groups to share experiences and explore specific topics. Also, the homework ensured that what was learnt in each session was explored further and applied immediately.

This course fills a huge gap and we believe it is much-needed so that women with fibroids have the support they need. Therefore, we highly recommend this course to anyone who has been affected by fibroids or is supporting a friend, family member or client with fibroids.

The next course starts on 6^th March at 7pm UK time and you can register online here or for more information you can email ohservices@counsellor.com

More Resources and Information

• Fibroids and Your Mental Wellbeing – a fact sheet by Lake Health and Wellbeing and OH Services
• OH Services – Improving the Mental Wellbeing of Our Community
• Podcast: We Talk to Olivia Haltman About the Emotional Impact of Fibroids
• OH Services Starts an Online Forum for Women With Fibroids

Early-bird registration ends soon for our fibroids and exercise webinar, in just a few days!

This webinar will focus on ‘The Importance of Exercise, Relaxation and Me-Time. ‘ and will take place on Saturday 23rd February at 11am AST (that’s 3pm GMT or 10am US Eastern Time).

In this third webinar we are pleased to have as a guest speaker Candice Bryan, the Founder and CEO of Noire Wellness. Candice will discuss the impact that exercise, physical activity and stress have on fibroids and how you can take control, balance your hormones and alleviate your symptoms through exercise, relaxation and having a bit of me-time.

“If sport and physical activity were a drug, it would be regarded as a miracle.” ~ Professor Dame Sally Davies, Chief Medical Officer, Department of Health, UK

Discounted Early Bird Tickets Are Now Available

Early bird tickets for this webinar are available until 23rd Jan and are just $10 (about £8) and you can book your place and find out more here or make a quick payment below using your credit card.  After 23rd Jan tickets are $15 (about £11).

[asp_product id=”5820″]

Previous Webinar

Did you miss the first webinar in our series: Fibroids, Diet and Hormones with guest speaker Le’Nise Brothers,  Registered Nutritional Therapist and the Founder of Eat Love Move?

Have no fear, you can download and purchase the recording of this webinar for just $15 and you’ll have on-demand access to this in-depth session on fibroids, diet and hormones which guides you through the changes that you can make to improve your hormonal health and therefore alleviate the symptoms associated with fibroids. Find out more and download this webinar here

More Information 

We hope that you’ll join us on 23rd Feb  for this really interesting online event and if you have any questions, please don’t hesitate to get in touch with us at events@lakehealthandwellbeing.com and you can book your place here

Cancer Research UK has reported that its scientists have developed a very comprehensive method of predicting a women’s risk of developing breast cancer.

This work was recently published in Genetics in Medicine where it was explained that by combining information on family history, genetics and other factors like weight, age at menopause, alcohol consumption and use of hormone replacement therapy, scientists are able to determine a woman’s breast cancer risk.

What makes their prediction more precise than previous methods is that researchers, for the first time, included 300 genetic indicators for breast cancer in their risk calculation.

This piece of work has led to the development of an online calculator that General Practitioners (GPs) in the UK can use in their surgeries. Currently this online  calculator is being tested by GPs, nurses and genetic counsellors before it is released nation-wide. The hope is that this tool will enable healthcare professionals to explore early detection and prevention strategies for women based on their risk and therefore improve survival rates for breast cancer.

Although this work is very exciting more work is needed, as expressed by lead author, Professor Antonis Antoniou, who said:

“It could be a game changer for breast cancer because now we can identify large numbers of women with different levels of risk – not just women who are at high risk.

This should help doctors to tailor the care they provide depending on their patients’ level of risk. For example, some women may need additional appointments with their doctor to discuss screening or prevention options and others may just need advice on their lifestyle and diet.

“We hope this means more people can be diagnosed early and survive their disease for longer, but more research and trials are needed before we will fully understand how this could be used.”

Additionally, Dr Richard Rope, Cancer Research UK’s GP expert warned that:

“Research like this is hugely exciting because in the future it will enable us to offer much more tailored care which will benefit patients and make best use of the services that we have available.

“Although having an increased risk of breast cancer means a woman is more likely to develop the disease – it’s by no means a certainty. A woman at high risk may never get breast cancer just as a woman at low risk still could. But any woman with concerns should speak to her GP to discuss the options.”

For more information on this work, you can read Cancer Research UK’s research paper here

OH Services, an organisation that aims to support people through the difficult periods of their life by offering counselling services, has recently started an online forum for women who have been affected by fibroids.

The forum is a closed private group that will enable women to connect with each other, share experiences and gain access to the expertise of OH Services.

It’s hoped that by having a space to share the ups and downs of having fibroids, women will be given an outlet to express their feelings and receive support in order to address the emotional impact of fibroids.

If you’ve been affected by fibroids and would like to try out this forum, you can find it on OH Services’ website here.

We’re delighted to be working with OH Services to support them in facilitating the discussions in the forum and look forward to connecting with women online.

CARE About Fibroids is a Washington, DC-based non-profit whose mission is to elevate uterine fibroids as a women’s health issue and drive change. Bringing together many of US’s most respected women’s health advocacy and policy-focused organizations to advance solutions, CARE About Fibroids is a catalyst for increased awareness, research and education about uterine fibroids, leading to earlier diagnosis and improved treatment.

As part of their mission to raise awareness of fibroids, they recently published a white paper entitled: ‘Uterine Fibroids: A Report on the Condition and its Impact on Women in the U.S. Their white paper provides some good background information on what fibroids are, how they are diagnosed and treatment options. They also discuss the challenges that women encounter with respect to diagnosis and the health system. As part of their discussion on the diagnosis challenges it was useful that the authors included a section exploring what is normal with regards to menstrual cycle. The confusion around this question means that many women are unable to recognise the symptoms of fibroids because they see their symptoms as being a normal part of their menstrual cycle.

We were also happy to see that the mental health challenges were discussed in this report, as this is an area that is often overlooked, and were pleased to see that the importance of family awareness was highlighted.

This was an interesting report which can be downloaded below.

On 27th October 2018, we hosted the first webinar in our fibroids self-care webinar series, Fibroids, Diet and Hormones. If you missed this webinar, we’re happy to say that the recording is now available.

In this first webinar we were delighted to have guest speaker, Le’Nise Brothers who is a Registered Nutritional Therapist and the Founder of Eat Love Move.  Le’Nise delivered a comprehensive, in-depth, informative presentation which you can download here. This 1-hour presentation includes:

• An introduction to fibroids including the types of fibroids, symptoms, risk factors and how fibroids are diagnosed as well as advice on getting the most out of your doctor’s appointment
• The causes of the continual growth of fibroids
• Balancing your hormones as an effective way of managing fibroids
• How you can take control and balance your hormones through diet and nutrition, lifestyle changes, physical support, stress management and emotional support

This is an excellent, empowering webinar that provides practical information that you can easily apply to your day-to-day routine to alleviate your symptoms and  successfully manage fibroids.

How to Access the Recording

To purchase and download this webinar, please do the following:

1.  Visit the webinar product page here
2. Click ‘Add to cart’
3. Follow all the instructions
4. Once you click ‘Place order’ you will have unlimited download access to the webinar.
5. After you make payment ($15), you simply click the blue button under “Download” and you’ll be taken to DropBox where you can watch the recording directly or you can click ‘Download’ at the top right of the screen to save the file to your computer or your DropBox to watch later.

If you have any problems downloading the recording, please don’t hesitate to get in touch with us by email events@lakehealthandwellbeing.com 

What  Attendees Had to Say About this Session

“I enjoyed the webinar today. Learned a lot. Thank you Le’nise for sharing your wisdom, it was very informative.”

“Great Webinar. Thanks very much Le’Nise and Abi.”

“This was a great webinar!”

“I didn’t want it to end!”

Upcoming Webinar

You may also be interested in the next webinar in our series which is on fibroids treatment. We’re delighted to have Consultant Gynaecologist, Apryll Chase, discussing all the treatment options for fibroids, their pros and cons and how to make the sometimes difficult decision of selecting the best treatment for you. You can find out more about this webinar here

Further Information

If you’d like more information or have any questions, please don’t hesitate to send us an email, we’d love to hear from you.

We are so pleased to let you know that registration for the second seminar in our Fibroids Self-Care Webinar Series is now open!

This second webinar will focus on treatment with the topic being ‘Deciding on the best treatment for you’ and  will be held on Saturday 1st December from 11am -1pm AST (that’s 3pm-5pm GMT or  10am-12pm US Eastern Time).

In this second webinar we are delighted to have as a guest speaker award-winning Consultant Gynaecologist Apryll Chase who will take participants through the treatment options for fibroids, the pros and cons of each treatment and how to make the sometimes difficult decision of selecting the best treatment for you.

Discounted Early Bird Tickets Are Now Available

Early bird tickets for this webinar are now available and are just $10 (about £8) and you can book your tickets on our website here

We Have A Special Giveaway Just For You

We’re pleased to let you know that all those who register for this webinar will be entered into a giveaway and one lucky person will win a copy of the book ‘Flow Fighter – How I Kicked My Fibroids and Heavy Periods to the Curb’ by Holly Bridges.

There is more!  We’re happy to say that all registered attendees will be eligible for a 20% discount when they order hair or body products from  Almocado and will also receive a  free shipping code from  Afrocenchix on any orders of over £20.

Other Webinars in this Series

Other webinars in the series will include:

Session 3: The Importance of Exercise, Relaxation and Me-Time, Candice Bryan, Founder and CEO, Noire Wellness, 23rd February 2019

Session 4: Hair and Body Care for Women With Fibroids, Rachael and Jocelyn, Founders of Afrocenchix, April 2019 (To be confirmed)

Session 5: Dealing with the Emotional Impact of Fibroids, Olivia Haltman, Founder, OH Services, June 2019

Session 6: Our Fibroids Stories – A Time to Share, August 2019

More Information 

We hope that you’ll join us on 1st Decemeber for this really interesting online event and if you have any questions, please don’t hesitate to get in touch with us at events@lakehealthandwellbeing.com and you can book your place here

Did you miss the first webinar in our series: Fibroids, Diet and Hormones with guest speaker Le’Nise Brothers,  Registered Nutritional Therapist and the Founder of Eat Love Move?

Have no fear, you can download and purchase the recording of this webinar for just $15 and you’ll have on-demand access to this in-depth session on fibroids, diet and hormones which guides you through the changes that you can make to improve your hormonal health and therefore alleviate the symptoms associated with fibroids. Find out more and download this webinar here

We’re so pleased to announce that the featured guest for our October Fibroids Twitter chat will be Julia Mandeville, the Co-Founder of the Barbados Association of Endometriosis and PCOS.

Research suggests that 30% of women with fibroids have endometriosis  and in many cases this additional condition goes undiagnosed for many years. By raising awareness of endometriosis we can empower women with the information needed to facilitate an early diagnosis so that the most appropriate treatment is received without delay.

We are so delighted to have Julia as a guest so our followers can get a better understanding of endometriosis especially women with fibroids who may have unexplained symptoms which could be due to this condition.

Who is Julia Mandeville?

Julia Mandeville has been a science and health educator since 2010, gaining a B.Sc in Biology with Microbiology with honours from the University of the West Indies. She also holds a Master of Public Health with a specialization in Global Health from the University of Manchester.

Julia is the co-founder of the Barbados Association of Endometriosis and PCOS (BAEP) and is an emerging global health professional who has a particular interest in reproductive health rights, invisible chronic disease management, research and policy specifically as it relates to Caribbean women’s health.

Her personal struggle with Endometriosis and subsequent diagnosis was the catalyst that caused her to utilize her voice and become an advocate. She also has experience as a consultant and more recently has expanded her academic portfolio with certificates in gender, development and NGO management.

The Barbados Association of Endometriosis and PCOS

The BAEP was founded to address the knowledge gap as it pertains to these pelvic conditions and their impact in Barbados. It serves to advocate for the women in Barbadian society who are suffering due to lack of awareness and works to engage with major and relevant stakeholders to raise these conditions to a priority level in the public health community.

The BAEP is a non-governmental organization located in Barbados which has also collaborated with local and regional entities with similar mandates.

Join Us!

Join our #FibroidsChat to find out more about endometriosis and  the great work that BAEP is conducting to support Caribbean women affected by endometriosis and PCOS. To take part in the conversation find us on Twitter on 10th October at  3pm ( AST or  8pm GMT ) and use the hashtag #FibroidsChat.

Find Out More

You can find out more about the BAEP here  and you can follow the BAEP on social media:

Twitter: @endoandpcosbb
Facebook: https://www.facebook.com/EndoFacts/
Instagram: https://www.instagram.com/endoandpcosbb/?hl=en

To be kept up-to-date on this topic, please sign-up to receive our fibroids newsletter  and you can read a summary of our previous #FibroidsChats here

A study published in August 2018 by researchers at the George Mason University in the USA has demonstrated that exposure to chemicals in beauty and personal care products affect women’s reproductive hormones, and these effects may have an impact on women’s health.

What Did They Do?

In their study, researchers focused on chemicals commonly used in beauty and personal care products. These included bisphenol A (BPA), chlorophenols, benzophenones (a UV filter) and parabens (preservatives). They evaluated these chemicals in 143 women over two menstrual cycles. They also analysed the reproductive hormones oestradiol, progesterone, luteinizing hormone (LH) and follicle stimulating hormone (FSH).

The 143 women in this study were aged 18 to 44 years old, had no known chronic health conditions and did not use birth control.

Dr Anna Pollack, lead researcher, on this study noted that:

“This study is the first to examine mixtures of chemicals that are widely used in personal care products in relation to hormones in healthy, reproductive-age women, using multiple measures of exposure across the menstrual cycle, which improved upon research that relied on one or two measures of chemicals”

This is an important point to note as measuring mixtures of chemicals better reflects the real-world situation where women will be exposed to several chemicals.

What Did They Find?

The study found that exposure to these chemicals, even low-level exposure to mixtures of these chemicals affected participants’ reproductive hormones.  Specifically, they found that:

• BPA, chlorophenols, UV filters and parabens were linked with reproductive hormones
• Parabens were associated with an increase in oestradiol
• Phenol and UV filters were linked to a decrease in oestradiol, FSH and LH

What Does This Mean?

The results of this study are interesting as changes in reproductive hormones have been linked to a number of health conditions such as fibroids, breast cancer and cardiovascular disease.  Therefore, care must be taken when selecting beauty and personal care products.

Researchers noted that:

“We have early indicators that chemicals such as parabens may increase oestrogen levels. If this finding is confirmed by additional research, it could have implications for oestrogen dependent diseases such as breast cancer.” Dr Anna Pollack

Researchers therefore concluded that:

“What we should take away from this study is that we may need to be careful about the chemicals in the beauty and personal care products we use.”

You May Also Be Interested in These Stories

• My Haircare Nightmare: Help Us Start A Revolution
• More Concerning Research on Black Hair Products
• Latest Research on Hair Dyes, Relaxers and Breast Cancer
• Black Women, Relaxers and Fibroids
• Black Hair Products: We Want to Hear from You!

You can read the research paper describing this study here

We like listening to the podcast The Nod. It’s a fun, witty and insightful look at black American culture. The hosts have a great way of exploring important topics and unearthing interesting untold stories.

In their episode released on 10th September 2018, ‘Bleeding and Healing‘, host Brittany Luse focuses on a common women’s health issue (we won’t tell you which one, so we don’t spoil the episode for you), that is overlooked and disproportionately affects black women.

This health issue is one that we have explored over the past couple of years and this episode of The Nod does a great job at raising awareness and highlighting some of the keys challenges such as:

• The extent to which women normalise pain
• Not having a clear idea of what is normal and abnormal when it comes to period pain and menstrual bleeding
• The lack of awareness of women’s health issues
• The length of time it takes for women to be diagnosed
• The confusion that can exist when it comes to making treatment decisions
• The challenges of finding not just a good doctor, but one black women feel comfortable with

This episode provides some good food for thought. You can listen to it here and below is the description of the episode from The Nod team.

“For years, KalaLea experiences painful periods that keep her in bed for days at a time. As she tries to figure out what’s happening to her body, she discovers that she has a condition that disproportionately affects Black women. This is the story of how KalaLea listened closely to her own body and made her doctors listen, too.

“This week’s story comes from the Bodies podcast. After the show, KalaLea joins Brittany in the studio to share advice on how to better advocate for your own wellness.” 

Have you listened to  the ‘Bleeding and Healing’ episode of The Nod? We’d love to hear what you think. Please leave a comment in the comments section below or send us an email.

Disclosure: this post contains an affiliate link. Find out more here