We recently came across the video below created by BuzzFeed which explores the experience of three women with fibroids. We thought it was an excellent exploration of the impact of fibroids.

Our Thoughts

These stories give viewers an insightful look at the impact of fibroids and highlighted some of the same issues raised in a recent book of short stories that we read, Invisible Not Imaginary by the Barbados Association of Endometriosis and PCOS.

The women bravely discuss heavy menstrual bleeding, anaemia, painful periods and their concerns about fertility.

As we watched the video, what struck us was the way in which all three women continued with their daily life despite their symptoms and seemed to almost normalise them until they could no longer bare it. The reason why they did this, as articulated by one of the women, was the expectation that women should pretty much ignore their own health and wellbeing, press on and continue with all their many obligations.

Another issue that was raised was recurrence, which is very common and can be quite frustrating for women who, after their initial surgery, will have moved on with their life and have put their experience of fibroids behind them. Having to deal with fibroids once more can be devastating.

The video ends with some useful tips and advice from each of the women based on their experience.  Participants encouraged women to:

• Prioritise their health,
• Seek help as soon as they notice symptoms that don’t seem right
• Be informed about fibroids
• Reach out to family and friends and talk about what you’re going through

Final Thoughts

We thought this video was a really effective way of raising awareness of fibroids and its impact. It identified areas that need to be addressed. These include the need for:

• Greater awareness of the symptoms of fibroids
• Greater awareness of what normal/abnormal periods are
•  Less pressure to be placed on women to try to continue as normal when they feel unwell
•  Research on whether  lifestyle changes may reduce a woman’s risk of having a recurrence after treatment
• More research to understand the prevention of fibroids
• More research to confirm the incidence and prevalence of fibroids, particularly in black women

More Information

For more information on fibroids, you can:

• Visit our fibroids blog and fibroids news sections
• Read through our My Fibroid Story section
• Read through the highlights of our fibroids Twitter chats
• Send a question to our Fibroids Ask the Expert panel
• Listen to our fibroids podcast interviews
  • My Ten Year Journey With Fibroids 
  • Fibroids, Hormones, Diet and Lifestyle
  • The Emotional Impact of Fibroids

The Barbados Association of Endometriosis and PCOS (BAEP) recently published ‘Invisible Not Imaginary’, a collection of short stories that aims to put the spotlight on endometriosis, fibroids, PCOS and dysmenorrhea. The book seeks to raise awareness of the impact of these conditions on the lives of those directly and indirectly affected.

This mostly fictional book invites you to dive into the lives of a variety of people as they navigate life with one of the above-mentioned conditions. Through Invisible Not Imaginary we explore the experience of adolescents, young women, mothers, working professionals and fathers.

Why We Love this Book

We thought Invisible Not Imaginary was a powerful and insightful read. It bravely explores issues like heavy menstrual bleeding, painful periods and infertility – common symptoms of these conditions. It also identifies the insensitivity, lack of empathy and the insecurities that women with these conditions encounter and experience.

Furthermore, the book causes the reader to reflect on the wide-spread normalisation of abnormal menstrual symptoms, the enormous pressure women feel to keep going despite feeling unwell and how invisible and misunderstood many women with these conditions feel.

The stories are very moving providing an honest, open account of the pain, isolation, upheaval, disruption and uncertainty caused by these gynaecological conditions which tend to be trivialised and disregarded because they are not life-threatening but as these stories clearly demonstrate, they significantly affect the quality of life, health and wellbeing of the many women who are affected.

We could relate to many of the experiences and believe the stories will resonate with most, if not all, women because of our shared menstrual experience.  Many women have a story about their menstrual health which they are hesitant to talk about; this book tells our story and gives us all a voice.

This collection of short stories is an excellent and creative way of raising awareness. It really brings the issues to life in a powerful way and leaves the reader feeling disturbed by the challenges faced by those affected by these conditions.

This Book Challenges Us All

This book challenges society to address the health inequalities that exist in public health where conditions like these receive little attention, yet affect so many.

Sadly, discussions about women’s health or reproductive health tend to omit conditions like fibroids and it’s time for a greater focus on these conditions and more balance so that all women’s health issues are deemed important.

Well Done BAEP!

We applaud BAEP on all the great work they have conducted to add some context and depth to the discussion on these women’s health issues and believe this will be an effective resource for awareness and educational work in a range of settings – schools, colleges, medical schools, book clubs, the health sector’s continuous professional development programme and more.

More Information

For more information on Invisible Not Imaginary and how you can order copies, please visit BAEP’s website here or you can send them an email

Also, you can read a summary of our fibroids and endometriosis Twitter chat with Julia Mandeville the co-founder of BAEP here

Lake Health and Wellbeing is delighted to invite women in St Kitts and Nevis who have been affected by fibroids to attend our upcoming event ‘Girl Talk: Fibroids.’

We have teamed up with Because We Care, a student group at the University of Medicine and Health Sciences, to organise a new series of women’s health events  entitled ‘Girl Talk: Informal and Empowering Discussions on Women’s Health’

This first event in our series will focus on fibroids, a common but overlooked women’s health issue that is estimated to affect 80% of black women.

Girl Talk aims to overcome the stigma associated with fibroids by creating a safe space to discuss fibroids, its impact on women and solutions.

We’ll have a panel of esteemed speakers covering various aspects of fibroids, a wellness market featuring St Kitts’ leading health, wellbeing and wellness brands, fantastic raffle prizes, free health checks, food and more!

Confirmed Speakers

Confirmed speakers include:

• Dr Hazel Laws, Chief Medical Officer, St Kitts – Fibroids and Women’s Health in St Kitts
• Dr Deborah Williams, Professor of Pathology – What Are Fibroids?
• Dr Lescott,  Medical Doctor – Fibroids and Nutrition
• Dr Pereira, Clinical Psychologist –  Living well with fibroids and chronic illness
• Dr Lawrence, Medical Doctor – The treatment of fibroids

Confirmed Vendors

We have some great organisations taking part in our Wellness Market. You can treat yourself to a range of products all aimed at improving your wellbeing.

Some of our confirmed vendors include:

Mother Becky Bush Tea – Mother Becky Bush Tea is named after owner Jermine Mike’s great grandmother who lived to be close to 100 years of age. Recognized as the matriarch of her community, Mother Becky hailed from a generation which drank bush tea daily. The Mother Becky Bush Tea brand aims to honor and revitalize the bush tea tradition of St. Kitts & Nevis and offer an authentic product to visitors and residents alike.

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Sugar Town Organics – Sugar Town Organics is a natural products manufacturer and distributor that offers high end botanical beauty (Yaphene) and wellness (Flauriel) products featuring the finest natural Caribbean materials. With a commitment to ethical manufacturing and promoting environmental sustainability, good health and wellness, the firm is family-owned and employs all-natural methods that celebrate the host of rich ingredients plentiful throughout the region.

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Pure Niceness by Winnielle – HANDCRAFTED on the island of St. Kitts amidst the natural wonders of the West Indian land, using all – natural, effective, aromatic, superior ingredients, sourced from the gifts of mother nature🍃and handmade with love and pure good vibes by island girl Winnielle. Her brand of hair and skin care promotes self-love, self-care, good vibes and a wellness lifestyle. SHOP Made in St. Kitts – Nevis, Shop Small… Experience Pure Niceness!

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Love the Skin You Wear – Love the Skin You Wear offers a range of services designed to help you relax and focus on your total wellness, these include massages and facials. They also sell natural handmade hair and body products.

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Prices

Join us this International Women’s Month on 30th March for this empowering and informative women’s health event.

Early bird tickets are just $30EC  for a regular ticket and $20EC for students.

You can book your place below and then pay at the event. Early bird tickets are available until 15th March 2019 so if you register before this date you’ll secure the early bird price, registrations after this date will be $35EC.

Registration Form

The information provided in the form below will enable us to contact you about the event regarding updates and important information.

No Fields Found.

We look forward to seeing you on 30th March and if you have any questions, please email  us or call 668 1518.

Back in 2013 we conducted a survey to understand the needs of women affected by fibroids. As we conducted this survey, we kept hearing very strong words and phrases describing how living with fibroids was affecting the mental health of women.

“I have hated life at times because of fibroids. I feel like I am being punished for something.”

“Depression from feeling that my only options were drugs or surgery”

“Fear of not being able to have children”

“Just a constant fear of what they could become”

As a result of this we started to explore this issue further by speaking to women who attended our fibroids awareness events and soon realised that this was a much wider problem. To compound this issue there was little information available, at the time, about the emotional impact of fibroids and no services to support women with fibroids in addressing these issues.

So, we decided to reach out to counsellor, Olivia Haltman, the founder of OH Services to speak at our Fibroid Focus event, a conference we held in 2016 for women with fibroids.

Olivia gave an excellent presentation that explored the emotional impact of fibroids explaining how fibroids can affect not just women’s physical health but their mental health too. The reaction from women after her presentation was profound, a stunned recognition that:

• Other women feel the way I do
• What I have been feeling isn’t trivial
• Someone articulated exactly how I was feeling in a way that I never could
• There is a way to address this aspect of my experience with fibroids

Following this event OH Services began work on developing their first 4-week online course on the emotional impact of fibroids. Not only was it a first for them but, to our knowledge, it is the first ever course on this topic. This course was launched in November 2018 and we had the pleasure of attending.

Over the 4 weeks OH Services created a safe space for women to come together to discuss the emotional impact of fibroids. As we listened to the discussion, we realised this was the first time that attendees were exploring this side of fibroids, and it was challenging. They were given the opportunity to reflect and explore their emotions and how these have been impacted by their experience with fibroids.

Ms Haltman explained with some clarity what specific emotions many women feel categorising them into the emotions that women may experience before and after a diagnosis, as well as some general emotions.

We learnt of the fear, anxiety and uncertainty that can occur in the lead up to a diagnosis which is particularly significant as many women with fibroids have symptoms weeks, months and sometimes years before receiving a confirmed diagnosis.

We also learnt of the emotional toll that managing symptoms such as pain, heavy bleeding and anaemia can have on a woman’s quality of life, affecting her personality, relationships, effectiveness at work and restricting the activities she can participate in.

Ms Haltman also described the difficulty of having to deal with treatment decisions, the potential of  a loss of fertility and the possibility of a recurrence after treatment.

The discussions during this course were insightful and thought-provoking and to ensure that participants made the most of each session, participants were given activities after each session to consolidate their learning.

The course ended on a positive note, one of hope and sisterhood with Ms Haltman taking participants through methods and techniques to address these emotions and start a self-development journey.

We really liked that the way this course was delivered. It was interactive and practical with participants being split up into groups to share experiences and explore specific topics. Also, the homework ensured that what was learnt in each session was explored further and applied immediately.

This course fills a huge gap and we believe it is much-needed so that women with fibroids have the support they need. Therefore, we highly recommend this course to anyone who has been affected by fibroids or is supporting a friend, family member or client with fibroids.

The next course starts on 6^th March at 7pm UK time and you can register online here or for more information you can email ohservices@counsellor.com

More Resources and Information

• Fibroids and Your Mental Wellbeing – a fact sheet by Lake Health and Wellbeing and OH Services
• OH Services – Improving the Mental Wellbeing of Our Community
• Podcast: We Talk to Olivia Haltman About the Emotional Impact of Fibroids
• OH Services Starts an Online Forum for Women With Fibroids

Early-bird registration ends soon for our fibroids and exercise webinar, in just a few days!

This webinar will focus on ‘The Importance of Exercise, Relaxation and Me-Time. ‘ and will take place on Saturday 23rd February at 11am AST (that’s 3pm GMT or 10am US Eastern Time).

In this third webinar we are pleased to have as a guest speaker Candice Bryan, the Founder and CEO of Noire Wellness. Candice will discuss the impact that exercise, physical activity and stress have on fibroids and how you can take control, balance your hormones and alleviate your symptoms through exercise, relaxation and having a bit of me-time.

“If sport and physical activity were a drug, it would be regarded as a miracle.” ~ Professor Dame Sally Davies, Chief Medical Officer, Department of Health, UK

Discounted Early Bird Tickets Are Now Available

Early bird tickets for this webinar are available until 23rd Jan and are just $10 (about £8) and you can book your place and find out more here or make a quick payment below using your credit card.  After 23rd Jan tickets are $15 (about £11).

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Previous Webinar

Did you miss the first webinar in our series: Fibroids, Diet and Hormones with guest speaker Le’Nise Brothers,  Registered Nutritional Therapist and the Founder of Eat Love Move?

Have no fear, you can download and purchase the recording of this webinar for just $15 and you’ll have on-demand access to this in-depth session on fibroids, diet and hormones which guides you through the changes that you can make to improve your hormonal health and therefore alleviate the symptoms associated with fibroids. Find out more and download this webinar here

More Information 

We hope that you’ll join us on 23rd Feb  for this really interesting online event and if you have any questions, please don’t hesitate to get in touch with us at events@lakehealthandwellbeing.com and you can book your place here

On 27th October 2018, we hosted the first webinar in our fibroids self-care webinar series, Fibroids, Diet and Hormones. If you missed this webinar, we’re happy to say that the recording is now available.

In this first webinar we were delighted to have guest speaker, Le’Nise Brothers who is a Registered Nutritional Therapist and the Founder of Eat Love Move.  Le’Nise delivered a comprehensive, in-depth, informative presentation which you can download here. This 1-hour presentation includes:

• An introduction to fibroids including the types of fibroids, symptoms, risk factors and how fibroids are diagnosed as well as advice on getting the most out of your doctor’s appointment
• The causes of the continual growth of fibroids
• Balancing your hormones as an effective way of managing fibroids
• How you can take control and balance your hormones through diet and nutrition, lifestyle changes, physical support, stress management and emotional support

This is an excellent, empowering webinar that provides practical information that you can easily apply to your day-to-day routine to alleviate your symptoms and  successfully manage fibroids.

How to Access the Recording

To purchase and download this webinar, please do the following:

1.  Visit the webinar product page here
2. Click ‘Add to cart’
3. Follow all the instructions
4. Once you click ‘Place order’ you will have unlimited download access to the webinar.
5. After you make payment ($15), you simply click the blue button under “Download” and you’ll be taken to DropBox where you can watch the recording directly or you can click ‘Download’ at the top right of the screen to save the file to your computer or your DropBox to watch later.

If you have any problems downloading the recording, please don’t hesitate to get in touch with us by email events@lakehealthandwellbeing.com 

What  Attendees Had to Say About this Session

“I enjoyed the webinar today. Learned a lot. Thank you Le’nise for sharing your wisdom, it was very informative.”

“Great Webinar. Thanks very much Le’Nise and Abi.”

“This was a great webinar!”

“I didn’t want it to end!”

Upcoming Webinar

You may also be interested in the next webinar in our series which is on fibroids treatment. We’re delighted to have Consultant Gynaecologist, Apryll Chase, discussing all the treatment options for fibroids, their pros and cons and how to make the sometimes difficult decision of selecting the best treatment for you. You can find out more about this webinar here

Further Information

If you’d like more information or have any questions, please don’t hesitate to send us an email, we’d love to hear from you.

We are so pleased to let you know that registration for the second seminar in our Fibroids Self-Care Webinar Series is now open!

This second webinar will focus on treatment with the topic being ‘Deciding on the best treatment for you’ and  will be held on Saturday 1st December from 11am -1pm AST (that’s 3pm-5pm GMT or  10am-12pm US Eastern Time).

In this second webinar we are delighted to have as a guest speaker award-winning Consultant Gynaecologist Apryll Chase who will take participants through the treatment options for fibroids, the pros and cons of each treatment and how to make the sometimes difficult decision of selecting the best treatment for you.

Discounted Early Bird Tickets Are Now Available

Early bird tickets for this webinar are now available and are just $10 (about £8) and you can book your tickets on our website here

We Have A Special Giveaway Just For You

We’re pleased to let you know that all those who register for this webinar will be entered into a giveaway and one lucky person will win a copy of the book ‘Flow Fighter – How I Kicked My Fibroids and Heavy Periods to the Curb’ by Holly Bridges.

There is more!  We’re happy to say that all registered attendees will be eligible for a 20% discount when they order hair or body products from  Almocado and will also receive a  free shipping code from  Afrocenchix on any orders of over £20.

Other Webinars in this Series

Other webinars in the series will include:

Session 3: The Importance of Exercise, Relaxation and Me-Time, Candice Bryan, Founder and CEO, Noire Wellness, 23rd February 2019

Session 4: Hair and Body Care for Women With Fibroids, Rachael and Jocelyn, Founders of Afrocenchix, April 2019 (To be confirmed)

Session 5: Dealing with the Emotional Impact of Fibroids, Olivia Haltman, Founder, OH Services, June 2019

Session 6: Our Fibroids Stories – A Time to Share, August 2019

More Information 

We hope that you’ll join us on 1st Decemeber for this really interesting online event and if you have any questions, please don’t hesitate to get in touch with us at events@lakehealthandwellbeing.com and you can book your place here

Did you miss the first webinar in our series: Fibroids, Diet and Hormones with guest speaker Le’Nise Brothers,  Registered Nutritional Therapist and the Founder of Eat Love Move?

Have no fear, you can download and purchase the recording of this webinar for just $15 and you’ll have on-demand access to this in-depth session on fibroids, diet and hormones which guides you through the changes that you can make to improve your hormonal health and therefore alleviate the symptoms associated with fibroids. Find out more and download this webinar here

We like listening to the podcast The Nod. It’s a fun, witty and insightful look at black American culture. The hosts have a great way of exploring important topics and unearthing interesting untold stories.

In their episode released on 10th September 2018, ‘Bleeding and Healing‘, host Brittany Luse focuses on a common women’s health issue (we won’t tell you which one, so we don’t spoil the episode for you), that is overlooked and disproportionately affects black women.

This health issue is one that we have explored over the past couple of years and this episode of The Nod does a great job at raising awareness and highlighting some of the keys challenges such as:

• The extent to which women normalise pain
• Not having a clear idea of what is normal and abnormal when it comes to period pain and menstrual bleeding
• The lack of awareness of women’s health issues
• The length of time it takes for women to be diagnosed
• The confusion that can exist when it comes to making treatment decisions
• The challenges of finding not just a good doctor, but one black women feel comfortable with

This episode provides some good food for thought. You can listen to it here and below is the description of the episode from The Nod team.

“For years, KalaLea experiences painful periods that keep her in bed for days at a time. As she tries to figure out what’s happening to her body, she discovers that she has a condition that disproportionately affects Black women. This is the story of how KalaLea listened closely to her own body and made her doctors listen, too.

“This week’s story comes from the Bodies podcast. After the show, KalaLea joins Brittany in the studio to share advice on how to better advocate for your own wellness.” 

Have you listened to  the ‘Bleeding and Healing’ episode of The Nod? We’d love to hear what you think. Please leave a comment in the comments section below or send us an email.

Disclosure: this post contains an affiliate link. Find out more here

We just finished reading Flow Fighter: How I Kicked My Fibroids and Heavy Periods to the Curb by Holly Bridges. We thought this was a very insightful and informative book that not only explores the personal experience of the author but that of other women, young and old, with fibroids, endometriosis and heavy menstrual bleeding. In this book we also hear from gynaecologists, young doctors, women’s health advocates and sexual health experts and through all these perspectives readers are given a comprehensive view of the fibroids experience.

We were also taken on an educational journey with the author having conducted extensive research into fibroids, other gynaecological conditions and heavy menstrual bleeding. The book explains, in detail, the latest warnings from the FDA and Health Canada on laparoscopic power morcellators and the drug Esmya. Helpfully and impressively we’re provided with:

• Timelines that provide context and background to these warnings,
• Letters, quotes, summaries of research, recommendations and reports from all interested parties on both sides of the argument of these warnings – the FDA, Health Canada, gynaecologists and other government agencies

The above facts were interspersed with commentary from the author which gave us some good background into both issues.

Our educational journey continued with a reminder of the structure and function of the women’s reproductive system, what fibroids are and what constitutes heavy menstrual bleeding.  The book covered all the treatment options for fibroids and what their pros and cons are. The author also reflects on the injustices that exist with respect to women’s health where the lack of focus on conditions like fibroids mean:

• There are still major gaps in research;
• There is a significant delay in the diagnosis of many women leading to years of unnecessary suffering;
• There is no clear understanding of the cause of fibroids and the best approaches to treat women;
• We have a healthcare system that is not patient-centred leading to women feeling isolated and confused.

Author Holly Bridges also discusses the reasons why hysterectomies are so common, why doctors recommend invasive treatments over non-invasive approaches, and why this needs to change.

At the core of this book is the message that women need to be empowered with all the information they need to make an informed decision about their treatment.

The format of the book is useful with many chapters ending with a list of takeaway messages. In addition, the author, throughout the book, refers readers to useful resources. These include books, research papers, videos and websites.

The book ends with a chapter entitled ‘Empowering Our Daughters’ which we thought was very important section because there is a need to ensure that the generations of women who follow have a better experience.

The only topic that we felt was missing was a discussion on the impact of diet, exercise and environmental toxins on fibroids. This was touched on very briefly and there was recognition at the end of the book that this is an area that requires some attention and the author will be exploring this in the future.

This was a very interesting and informative book and we recommend it to anyone wanting to learn more about the experience of women with fibroids and how we can move forward and ensure that women get the best care possible.

You Can Claim A Discount on this Book

We’re delighted to say that Holly Bridges is offering a 20% discount on her book to all our blog readers. To claim your discount, visit her website and use the discount code LakeHealth at check out.

Also, the first few people who register to attend our fibroids self-care webinar in October will be entered into a giveaway and one lucky person will win a copy of the book.

Have You Read Flow Fighter?

Have you read this book? We’d love to hear your thoughts. Please leave them in the comments section below or send us an email

Disclosure: this post contains an affiliate link. Find out more here

We are delighted to let you know that registration for our Fibroids Self-Care Webinar Series is now open! Our series starts on Saturday 27th October at 11am AST/4pm GMT with a session led by Le’Nise Brothers, a Registered Nutritional Therapist and the Founder of Eat Love Move.

Le’Nise will deliver a webinar on Fibroids, Diet and Hormones giving attendees the opportunity to learn about the role that hormones play in the development of fibroids and how simple changes to your diet may improve symptoms.

Discounted Early Bird Tickets Are Now Available

Early bird tickets for this webinar are now available and are just $10 (about £8) and you can book your tickets on Eventbrite 

We Have A Special Giveaway Just For You

We’re pleased to let you know that the first 10 people who register for this webinar will be entered into a giveaway and one lucky person will win a copy of the book ‘Flow Fighters – How I Kicked My Fibroids and Heavy Periods to the Curb’ by Holly Bridges.

We’re also delighted to have formed a partnership with OH Services who will be launching their ‘Emotional Impact of Fibroids’ online course in November 2018.  The first 10 people to register for our webinar on 27th October 2018 can claim a £5 discount on the cost of the OH Services course.

Other Webinars in this Series

Other webinars in the series will include:

Session 2: Deciding on the Best Treatment For You, Apryll Chase, Consultant Gynaecologist, 5th December 2018

Session 3: The Importance of Exercise, Relaxation and Me-Time, Candice Bryan, Founder and CEO, Noire Wellness, 23rd February 2019

Session 4: Hair and Body Care for Women With Fibroids, Rachael and Jocelyn, Founders of Afrocenchix, April 2019 (To be confirmed)

Session 5: Dealing with the Emotional Impact of Fibroids, Olivia Haltman, Founder, OH Services, June 2019

Session 6: Our Fibroids Stories – A Time to Share, August 2019

More Information 

We hope that you’ll join us on 27th October for this really interesting online event and if you have any questions, please don’t hesitate to get in touch with us at events@lakehealthandwellbeing.com or visit our Eventbrite page

Disclosure: this post contains an affiliate link. Find out more here