We are delighted to announce our next fibroids Twitter chat will be on Wednesday 15th February 2017 from 7pm-8pm. We will be joined by special guests Dr Sydney Dillard, CEO of Fighting Fibroids, Candice Bryan, CEO and Founder of Noire Wellness and Leah Salmon, Founder of the Naturally You Coach with host, our own Abi Begho, founder of The Lake Foundation.
This Twitter chat has been organised to allow for an in-depth discussion on fibroids, diet and exericse.
We’ll be putting questions to our expert panel and you can put your questions to them too. So if you have a burning question about fibroids or just want to get involved in the discussion then do join us on the day. To take part in the conversation please use the hashtag #FibroidsChat.
We’re delighted to announce that we have teamed up with Voices for Autism to host our first Autism Health and Wellbeing Conference. This event is aimed at parents, carers and teachers of children with autism and will cover a range to topics to empower attendees with the information they need to successfully care for a child with autism.
On the day we’ll be looking at therapeutic options and the impact of nutrition and physical activity on autism. We’ll also explore autism friendly initiatives and hear personal stories from parents.
Autism is quite common in the UK affecting approximately 700,000 people. It is a lifelong developmental disability that affects how a person sees the world. It also affects how a person communicates with, and relates to other people. It is a spectrum condition which means people with autism have a range of difficulties in common but it affects everyone differently. It can be hard for those caring for a child with autism to find support and advice on how to manage their child’s condition and so organisations like Voices for Autism have been organising a range of much-needed support services.
Our conference aims to connect parents, experts, teachers and carers to create the perfect environment for shared learning.
This conference will be held on Saturday 15th July at the Bernard Weatherhill Community Space in Croydon. More details will be available from April 2017, but please save the date.
For more information please email events@thelakefoundation.com
In this week’s blog freelance journalist Stacey Mensah discusses dementia.
Welcome back, you lovely people! It’s the end of another week and I don’t know about you but I’m glad it’s here. I’ve also just realized that it’s the last weekend in January! How are we feeling about that? I don’t know whether to be excited by the fact that we’ll be saying bye-bye to January blues, or sad because we are another month closer to bikini season – or should I say overall season. Ha! Let’s leave the issue of bikini season to one side – for now – and let’s discuss dementia, and how regular exercise can reduce the odds of developing this disease.
Dementia 101
Dementia refers to a set of symptoms that include, but are not limited to, memory loss and deficiencies with thinking, problem-solving and language. Although these changes are incredibly minor to start off with, over time they do become severe enough to affect everyday life. Of course, the best thing to do would be to get a proper assessment of problems but the waiting times of the NHS stretching as far as two weeks it’s best to take preventative measures while you still can.
In a recent study, it was found that people who exercised regularly appeared to have lower odds of developing dementia than those that didn’t. This study followed more than 1,500 adults, aged 65 and older. This isn’t to say that if you’re younger than 65 you can stop reading – carry on, you’ll be surprised.
The symptoms of dementia can be seen in those that are younger than 65. This is usually referred to as having young-onset dementia. The stressful events of life including weddings, job losses and divorce have also been linked to this development. Unfortunately, there is a wider range of diseases that trigger young-onset dementia. Most importantly, people with this type of dementia are far more likely to be diagnosed with a rarer form of the disease. In both cases getting a diagnosis would be the best thing too – regardless of how long you may have to wait, it is worth it!
Getting Real
Here at the Lake Foundation, we take health incredibly seriously. It’s not a fad, but we do struggle. We are simply normal peopleand at times we have questionable eating habits. And of course when I say we, I mean me. Eating healthily and exercising regularly as always been an obstacle for me. Actually, to call it an obstacle would be a major understatement, as obstacles are usually overcome within time. This obstacle has become that piece of furniture in the corner that you just can’t seem to throw away. When you wake up, it’s there. When you go to bed, ooooh wait…no, it’s still there. When my family and friends ask me about it, I rationalize its being; somehow relating it back to the core of my existence. I know, how dramatic, right?
I tell you this because we are all in this together. For the start of February, my plan is to change the rules that I live by. For a wise woman once said that some rules are nothing but old habits that people are afraid to change.
The Lake Foundation has teamed up with Diabetes UK to run a 12 month Diabetes Community Champion project in Croydon that is aimed at the African and African-Caribbean community. Through this project we’re hoping to raise awareness of diabetes and how it can be prevented, and for those with diabetes, provide information on how best to manage their condition and secure better health outcomes.
We’re currently looking for volunteers to take on the role of Diabetes Community Champions.
Diabetes Community Champions will raise awareness of diabetes and this may involve giving presentations, hosting information tables at events, distributing leaflets and information, taking part in local radio interviews, writing blogs and exploring creative ways of engaging with the black community. In addition volunteers, if interested, can work with local GPs to identify pre-diabetics and work with them on a one-to-one basis to reduce their risk through a behaviour change programme.
Community Champions can dedicate as much time as they are able to this project, but ideally we’d like volunteers to commit to at least 1 – 2 days a month to ensure we can make the most impact possible.
Full training will be provided to all volunteers.
If you’re interested in being a Diabetes Community Champion, please complete an online registration form here or email info@thelakefoundation.com for more information.
The All-Party Parliamentary Group on Women’s Health is a cross-party group of MPs and Peers in the UK Parliament of Westminster. They have launched an inquiry into whether women are given an informed choice about the treatment options available for particular conditions. Fibroids and endometriosis are among the conditions the group would like to shine a spotlight on.
The group will produce a report which will assess if women are given an informed choice about treatment options and outline what improvements need to be made.
As part of this inquiry the group is inviting interested parties to submit written evidence. Evidence can be submitted via the following links (endometriosis)(fibroids) or emailed directly to appgwh@mailpbconsulting.com using the pro forma below. Patient experience, anecdotal evidence as well as any sort of data would be gratefully received.
The group would like to hear about current practice as well as potential barriers and issues in order to understand what key recommendations the group can take forward. The group will be accepting written evidence until the end of February 2017.
If you’ve been affected by fibroids we strongly encourage you to submit written evidence on your experience when you were offered treatment. This will make a significant difference and help identify any issues that exist can be identified so that these can be addressed to ensure that the diagnosis and treatment pathway for all women is improved.
If you would like any further information about the inquiry or the group’s work more generally, please contact the group secretariat at appgwh@mailpbconsulting.com or call 020 7735 6963.
Last week, we had the pleasure of attending the launch of Prostate Cancer UK’s Stronger Knowing More campaign. This campaign is aimed at black men and puts the spotlight on the fact that black men have a higher risk of developing prostate cancer. Black men have a 1 in 4 chance of developing prostate cancer, which is double the risk faced by white men.
The campaign was formally launched on 17th January at 15 Hatfields . The event started with a networking session where we were able to speak to staff members involved in developing this much-needed campaign, hear from men who have been affected by prostate cancer and view the very powerful images being used for Stronger Knowing More.
Powerful Imagery
Our first mission as we walked around the beautiful venue was to look at the exhibition of images which were created for the campaign.
Prostate Cancer UK worked with photographer Dennis Morris to create a collection of photographs of black men from the worlds of sport, politics and the arts as well as prostate cancer survivors in a show of strength against prostate cancer. The collection of images featured former WBA World Heavyweight champion David Haye, Olympic gold medallist, Linford Christie Labour MP, Chuka Umunna, writer and musician Benjamin Zephaniah, ex-England footballer Viv Anderson and Red Dwarf star Danny John-Jules.
Reading through the captions of the each picture was really inspiring, moving and empowering and we’re sure that as men see these it was make them reflect on their health and perceptions of prostate cancer.
It was also interesting to read the behind the scenes view of the creation of the pictures with photographer Dennis Morris explaining that each shot was carefully thought through. For his photo shoot he asked each of his subjects to select a location where they felt the strongest and he was able to capture moments of defiance, strength and vulnerability. It is hoped that the pictures will tap into the inner strength of men and when combined with information will defeat the silence and stigma around prostate cancer.
Moving Stories
During the networking session we spoke to several men with experience of prostate cancer and were so moved by their experience and the fact that despite their health they were working tirelessly to raise awareness and support other men. It was also interesting to learn of how some men came to be diagnosed, many by chance encounters with people who made them think which really highlighted that small gestures can make a huge difference in someone’s life.
We spoke to one man whose first words to us were: “that man saved my life” as he pointed to one of Prostate Cancer UK’s most well-known patient volunteers, Errol McKellar. He told us that he was waiting at a train station one day when Errol began speaking to him about prostate cancer and ended the conversation by giving him a leaflet, which he only took to “shut him up!” He said that leaflet stayed on his desk at work for two weeks and then during a slow day at work he read the leaflet and realised he had some of the symptoms of prostate cancer. He visited his GP and was later diagnosed with prostate c,ancer, which he said was devastating. All he could think about was not being there for his wife and children and not being around to see his children grow up, “they are still so young”. Luckily he was diagnosed at a fairly early stage and his future is bright, but had he not met Errol McKellar his story could have been so different.
Inspiring Speeches
After the networking session it was time for speeches. We first heard from Tom Shrophire, Trustee of Prostate Cancer, UK who gave some background to the campaign and how it came into being. He said that there was a need to publically acknowledge the heightened risk black men have and start implementing a solution that seeks to raise awareness as many men don’t realise they are at an increased risk. He said this work is part of Prostate Cancer UK’s aim to tame prostate cancer in the next 10 years and this means they have to make black men, black families and black communities a priority.
We also heard from Prostate Cancer UK ambassador, Errol McKellar, who shared his touching story about his experience with prostate cancer. He was diagnosed after reading a leaflet about the PSA test and then decided to have the test done. He explained how prostate cancer totally changed his life and was the most difficult challenge of his life. He described the importance of having a good support system and said he would have never made it through this disease without the support of his wife (“my wife was my strength”). He gave hope to men by saying his prostate cancer diagnosis had knocked him down, yes, but it hadn’t knocked him out. He gave a realistic view telling the audience that he is still battling some of the side effects of treatment and of the disease itself and it has taken him a long time to come to terms with how it has affected his life. He also described his more vulnerable moments, like when he was diagnosed, he said “he cried like a baby.”
We were so inspired by all the work Errol has done since his recovery. After he recovered from his treatment and was fit to return to work he was contemplating how he could make difference. So he decided that he would speak to every man that came into his mechanic shop about prostate cancer.
On his first day back to work he started with his first customer and asked him: “When last did you get your prostate checked?” He then offered his customer a 20% discount if he got a PSA test done and reported back to him. Sure enough a few months later the man return for his 20% discount having completed his PSA test but was shockingly diagnosed with early stage prostate cancer. The man said that Errol should donate the discount to charity and keep raising awareness. That was back in 2011 and since then Errol has spoken to hundreds of men about prostate cancer which has resulted in 26 men being diagnosed with prostate cancer, sadly two of those men have since passed away.
Finally we heard from actor Rudolph Walker, who has been working with Prostate Cancer UK for a number of years to raise awareness. Whilst he hasn’t had prostate cancer himself he spoke of his close friend who sadly lost his life to prostate cancer, but had he known the symptoms and been diagnosed earlier he may still be here today.
Getting Involved
On the night Prostate Cancer UK asked us all to make a pledge to support their campaign and raise awareness and we’ve pledged to do just that.
You can also get involved in this campaign and Prostate Cancer UK have said you could do any of the following:
Read the ‘information for black men’ guide, wear your ‘man of men’ charity pin badge, and spread the word. Give the second guide and badge to someone who needs it
So let’s all get involved in raising awareness, breaking down the walls of silence and work towards saving our husbands, fathers, brothers, uncles, grandfathers, cousins and friends from prostate cancer.
This week Prostate Cancer UK launched their ‘Stronger Knowing More’ campaign which is aimed at black men and puts the spotlight on the fact that black men have a significantly higher risk of developing prostate cancer. Black men have a 1 in 4 chance of developing prostate cancer, which is double the risk faced by all men who have a 1 in 8 chance of developing prostate cancer.
In addition to this increased risk of developing this devastating disease black mean are twice as likely to die from prostate cancer. Black men have a 1 in 12 lifetime risk of dying from prostate cancer whilst all men have a 1 in 24 lifetime risk of developing prostate.
As a result of these alarming statistics Prostate Cancer UK recognised the importance of ensuring that all black men are aware of their risk so they can take steps to do something about it.
Prostate Cancer UK’s Stronger Knowing More campaign uses positive and empowering portraits of black men from the worlds of sport, politics and the arts as a show of strength against prostate cancer. Former WBA World Heavyweight champion David Haye, Olympic gold medallist, Linford Christie and Labour MP, Chuka Umunna are among the well-known faces supporting this campaign.
Stronger Knowing More is calling on the black community to confront the increased risk of prostate cancer and break down longstanding taboos that have prevented black men from speaking about the disease.
It is not known why black men have an increased risk of developing prostate cancer but genetics is thought to play a role. We can all do something about this by being aware of the symptoms and men acting quickly and visiting their doctor, without delay, if they have symptoms they are concerned about.
For more information about black men’s risk of developing prostate cancer visit Prostate Cancer UK’s website here, view the video below or if you have any concerns you can call their helpline 0800 074 8383.
Last night, we were so excited to host our first fibroids Twitter chat. We were joined by special guests Dr Sydney Dillard, CEO of Fighting Fibroids and Renee Brown Small Co-founder of The Fibroids Project with host, our own Abi Begho, founder of The Lake Foundation.
If you missed our Twitter chat you can check out our conversation below and look out for our next Twitter chat on Wednesday 15th February at 7pm (UK time).
Update June 2018: Please note that tweets from Renee Brown Small are no longer available so some information is missing from the chat below.
Great example of what I meant! Lots of foods have estrogen, but we also have to worry about artificial vs natural estrogen. #fibroidschathttps://t.co/qN9sgzP6VM
In this week’s blog post we hear from freelance journalist, Stacey Mensah, who reflects on the importance of setting resolutions that ensure we become fully rounded individuals.
As we go into another week of the new year it’s so easy to become consumed with the gimmick of new year’s resolutions. As the time passes by we slowly become desensitised to why we’re actually setting these goals – in particular, our health goals. We become obsessed by the numbers; the dress size, the number on the scale and the number of super food salads we have posted on our social media platforms and obviously consumed – obviously! But, it’s time for a reality check; what happens when that isn’t enough? Yes, you’ve changed your diet but what happens when the other aspects of your lifestyle put you and your loved ones in danger? I spoke to the daughter of a woman who was initially diagnosed with cervical cancer, but after various check-ups it turned out to be something entirely different. Here is what she had to say:
“My mother is a workaholic, that is all she has ever known. In order to provide for my siblings and I she has had to work a great deal. This meant that she didn’t really have time to go to the doctors for her check-ups. She was far too busy worrying about everyone else in the family, to worry about herself. That wasn’t until she started bleeding heavily. At first no one knew what it was until the doctors diagnosed her with cervical cancer. We couldn’t believe it.”
In the UK alone, Cancer Research UK reports that around 3,200 new cases of cervical cancer are discovered each year. Meaning that 9 cases are diagnosed every day. With cervical cancer rates remaining stable in the UK this would not be the time to shy away from getting checked out and keeping your loved ones in the loop.
“Of course, being the protective mother she is she wanted to prepare us, trying to figure out the best way to slowly tell us. I had never felt so vulnerable. It was too late and I could do nothing about it. This was a wake-up call, none like any other. We started cooking healthier foods, making sure she was getting her nutrients in. And of course she had to realise that working the amount that she did was not good for her health. Luckily, the doctor re-diagnosed her with having an extreme case of menopause. My mother turned out to be one of the lucky ones that day. I hope she realises that.”
I don’t know about you but I’d rather not leave it to luck. With the rates of the survival of cervical cancer improving, now would be a great time to be proactive and go to see your local GP. It’s good to have goals and it’s even better to accomplish them, but in the process let’s not forget about the other 30%. For 2017 let’s work on becoming better fully rounded individuals. This can be done by focusing on a number of things including how many hours of sleep you’re getting, your working hours, your social life and more.
Here’s to a happy and most importantly healthy 2017 🙂
The Lake Foundation is delighted to announce that we have received a grant from Croydon Council to work in collaboration with Diabetes UK to run a Diabetes Community Champion project in Croydon
This grant will support the cost of running this project for a year which aims to raise awareness of diabetes amongst the African and African-Caribbean community in Croydon who are three times more likely to develop the condition. The project’s focus will be on encouraging people to make lifestyle changes to reduce their risk of developing diabetes and this will involve raising awareness throughout Croydon and also working closely with pre-diabetics.
We’ll be recruiting Diabetes Community Champions who will be fully trained and will become the lifeblood of the project by getting out in the community to reach as many people as possible.
We are very grateful to Croydon Council for supporting us to tackle this very important health issue in the black community and we look forward to working with Diabetes UK.
If you’re interested in becoming a Diabetes Community Champion, please email info@thelakefoundation.com for more information.
