We are delighted to announce the launch of our new fibroids booklet. This booklet was developed in response to our fibroids survey which showed that:
- There was a general low level of awareness of fibroids amongst participants prior to their diagnosis
- There was a good level of awareness of the main symptoms of fibroids but a low level of awareness of other symptoms.
- Participants were aware that ethnicity was a risk factor for fibroids but less aware of other risk factors.
- 80% of participants stated that they needed information but only 53% said that this was available to them.
- 63% of women said they didn’t feel that they had enough information to make an informed decision about their treatment
In addition to the above some participants stated that their biggest challenge in managing their condition was the lack of information and conflicting information about fibroids. For example, one participant said, “there is not enough information, particularly with regards to surgery alternatives and diet changes.”
What the booklet covers
Our booklet provides much-needed information on all aspects of fibroids from symptoms and risk factors to treatment and prevention. It aims to ensure that women have accurate, reliable information about this condition and importantly discusses the treatment options available. We hope this booklet will be a one-stop-shop for anyone with questions or concerns about fibroids.
We appreciate all those who have helped us
We’re delighted to have had some excellent reviewers work with us. We would like to say a big thank you to Dr Nigel Hacking, Consultant Interventional Radiologist at Southampton University Hospital and Miss Rosol Hamid, Consultant Obstetrician & Gynaecologist and Head of Women Services at Croydon University Hospital for providing very helpful comments and suggestions.
We would also like to thank Celia Osu and Tenequa Wildy for their useful feedback and our case studies for their willingness to share their experience and raise awareness. Finally, we are grateful to The Brielle Agency for proofreading our work and to Adrinqa for their creativity in designing the booklet.
You can download a pdf below and hard copies will be available soon.