Lake Health and Wellbeing is  happy to support Dafina Malovska’s campaign calling on the UK’s Department of Health to introduce annual gynaecological check-ups for every woman in the UK. We believe a policy like this will save many lives by enabling the early diagnosis of gynaecological cancers that have no screening programmes – ovarian, womb, vulval and vaginal cancers.

Also, annual check-ups can assist in the early diagnosis of a range of conditions that significantly affect women’s quality of life, such as fibroids and endometriosis.

You can show your support by signing Dafina’s petition here and please read the article below to find out more about this issue.

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At the age of 35, Dafina Malovska was diagnosed with stage 2 womb cancer which had spread to her ovaries. Her only option, at the time, was to have a total hysterectomy (the removal of her womb and both ovaries) which sadly deprived her of having her own children and plunged her into an immediate surgical menopause.

Dafina was lucky that her cancer was diagnosed at a fairly early stage and she survived, but many women are not so lucky and are diagnosed at a late stage when it is too late for successful treatment.  The late diagnosis of these gynaecological cancers occur, in part, because there is no screening programme for most of these cancers.

Currently in the UK cervical cancer is the only gynaecological cancer with a screening programme and this has successfully reduced the incidence and mortality rates for cervical cancer.

Developing a cancer screening test is challenging and researchers across the world are working tirelessly to develop screening tests for those cancers that require one.  Until then, when it comes to womb, ovarian, vulval and vaginal cancers, women have to be aware of the signs and symptoms, but this can be problematic as it can be hard to identify symptoms as the symptoms of these types of cancers are similar to a range of other conditions which can lead to misdiagnosis.

For example, in February 2014, before Dafina was diagnosed with womb cancer she started experiencing extreme bloating and visited her doctor almost monthly. Eventually her symptoms were wrongly attributed to gluten-related bloating and by November of that year Dafina became very unwell while abroad and it was subsequently discovered that she had 14cm tumour weighing 500g .

If Dafina had access to an annual gynaecological check-up her tumour could have been discovered earlier before it had spread to her ovaries.

In many countries throughout the world, girls and women have annual gynaecological examinations and it’s important that the UK explores this approach as its survival rates for gynaecological cancers such as ovarian cancer are significantly lower than other countries’ rates.

Change is needed and you can make a difference by signing Dafina’s petition which appeals to the Secretary of State for Health, Matt Hancock MP, and the Minister for Women and Equality, Penny Mordaunt, to explore the introduction of annual gynaecological check-ups for women in the UK.

The first target for this petition is 10,000 signatures and her ultimate target is 100,000.  So far, Dafina has been able to secure 3,723 signatures. When her target is achieved, her petition will be presented to Matt Hancock and Penny Mordaunt.

Dafina would be very grateful if you could please sign, share and spread the word and for more information, you can follow her campaign on Instagram

Cancer Research UK has reported that its scientists have developed a very comprehensive method of predicting a women’s risk of developing breast cancer.

This work was recently published in Genetics in Medicine where it was explained that by combining information on family history, genetics and other factors like weight, age at menopause, alcohol consumption and use of hormone replacement therapy, scientists are able to determine a woman’s breast cancer risk.

What makes their prediction more precise than previous methods is that researchers, for the first time, included 300 genetic indicators for breast cancer in their risk calculation.

This piece of work has led to the development of an online calculator that General Practitioners (GPs) in the UK can use in their surgeries. Currently this online  calculator is being tested by GPs, nurses and genetic counsellors before it is released nation-wide. The hope is that this tool will enable healthcare professionals to explore early detection and prevention strategies for women based on their risk and therefore improve survival rates for breast cancer.

Although this work is very exciting more work is needed, as expressed by lead author, Professor Antonis Antoniou, who said:

“It could be a game changer for breast cancer because now we can identify large numbers of women with different levels of risk – not just women who are at high risk.

This should help doctors to tailor the care they provide depending on their patients’ level of risk. For example, some women may need additional appointments with their doctor to discuss screening or prevention options and others may just need advice on their lifestyle and diet.

“We hope this means more people can be diagnosed early and survive their disease for longer, but more research and trials are needed before we will fully understand how this could be used.”

Additionally, Dr Richard Rope, Cancer Research UK’s GP expert warned that:

“Research like this is hugely exciting because in the future it will enable us to offer much more tailored care which will benefit patients and make best use of the services that we have available.

“Although having an increased risk of breast cancer means a woman is more likely to develop the disease – it’s by no means a certainty. A woman at high risk may never get breast cancer just as a woman at low risk still could. But any woman with concerns should speak to her GP to discuss the options.”

For more information on this work, you can read Cancer Research UK’s research paper here

Kantar Health is a market research agency that specialises in pharmaceutical research, they regularly speak to physicians, patients and carers and have a wealth of experience in conducting healthcare research.  They work on behalf of pharmaceutical companies to speak to and understand how various health issues impact people’s live. On this occasion, Kantar Health would like to talk to patients who have been diagnosed with ALK+ Non-Small Cell Lung Cancer (NSCLC), and are undergoing treatment.

The research will be individual in-depth interviews that will take approximately 1 hour and will be conducted either via a secure video link (like Skype or FaceTime), or in your home if you feel comfortable doing so. As part of the research the company will also be asking participants to complete a diary or task for 10-15 minutes per day, for 5 days prior to the interview.

The aim of this research is to better understand patient journeys, when, where and with whom they interact before and after their diagnosis, and identify support they may have and / or need.

 All information that is shared as part of the interview will be kept strictly confidential and there will be no attempt to sell you anything. Your decision to participate, or not, will not influence any current or future treatment decisions.

Kantar Health’s interviews are carried out in accordance with current (European: MRS, EphMRA, ESOMAR, BHBIA) guidelines and Data Protection Laws as well as with local UK specific rules.

As an appreciation of your time participants will receive an amount of £200 in your choice of bank transfer or cheque.

If you are interested in taking part, please contact Megan Grendon from Gillian Kenny Associates on 01242 240 842 or MeganGrendon@gilliankenny.com

Gillian Kenny Associates is the medical market research agency that Kantar Health is using to recruit individuals  to see if you are eligible for the study.

The Cancer Centre Eastern Caribbean was launched in July 2015 as part of the Organisation of Eastern Caribbean States’ mandate for its residents.  The centre is based in Antigua, is the first of its kind in the Caribbean and aims to provide the highest quality of care to its patients.  It is equipped with state-of-the-art technology and facilities and the care delivered is based on the Partnered Care Model where the delivery of healthcare involves the private sector, public sector and the general public, making treatment affordable to patients.

Their Services

The centre offers its patients the following services:

Medical Concierge Service – patients will be arriving from a number of Eastern Caribbean countries and having to travel for treatment can be a daunting and draining experience for patients. To ease the burden of travel the centre has set up a medical concierge service. Upon arrival in Antigua patients will be met by a member of the centre’s concierge team. They will be assisted with their luggage and transported to their guest house and transportation can be arranged to take patients to  and from their appointments at the centre.

Treatment Consultations –  all patients will have a professional and comprehensive consultation with an oncologist. At this appointment the patient’s test results and medical records will be reviewed and a treatment plan developed,  any additional tests that are required will be done in-house at the centre.

Chemotherapy –  a wide range of chemotherapy is available and the highest standards of delivery can be expected from the centre.

Radiotherapy –  External beam radiation therapy is also available using state-of-the-art equipment.

Who can access the centre?

The cancer centre serves all residents of the OECS member states as well as patients from outside the OECS. They see insured patients, private patients and government sponsored patients.

More Information

For more information about the centre please contact them using the details below:

The Cancer Centre Easter Caribbean
The Medical Pavilion Antigua
Michael’s Mount
Queen Elizabeth Highway
P.O. Box W599
St John’s, Antigua, W.I.

Tel: 1-268-460-6000
Fax: 1-268-460-6000
Email: info@TMP-Antigua.com
Website: http://www.thecancercentreeasterncaribbean.com

Story update:  The Canadian government’s alcohol  and  cancer warning label experiment has been halted due to pressure from the alcohol industry who threatened legal action for defamation and trademark infringement.

Many drinkers are unaware that alcohol causes a number of cancers including breast and bowel cancer. In order to raise awareness of this the Yukon government, in collaboration with researchers, has introduced labels on alcoholic drinks warning that alcohol causes cancer. The labels also provide recommendations on safe alcohol consumption for men and women as well as advising that people should plan to have two or more non-drinking days a week.

This new initiative was a challenge to implement as Yukon is a small jurisdiction and couldn’t influence drinks manufacturers to change their labelling. Therefore the Yukon Liquor Corporation and Public Health Ontario researcher, Erin Hobin, affixed the labels to thousands of bottles themselves.

These labels are a world’s first. No other country warns drinkers, through labelling on drinks, that alcohol causes breast or bowel cancer; South Korea highlights the link between alcohol and liver cancer and the US only warns of the dangers of drunk driving and risks of drinking while pregnant.

Researcher Erin Hobbs explained the reasoning behind the labelling:

“Alcohol is such a big part of our culture in Canada. We’re inundated with alcohol marketing that shows us how much fun alcohol is. It’s part of most of our celebrations … (But) consumers have a right to know the health risks if they do choose to drink alcohol. If they do choose to drink, they can do so in a safer manner.”

Alcohol is not just linked to breast and bowel cancer, but has also been linked to cancers of the mouth, upper throat, food pipe, voice box and liver.  The number one cancer impacted by alcohol is breast cancer.

The International Agency for Research on Cancer  has classified alcohol as a type 1 carcinogen, which means there is the highest level of evidence to suggest that it does cause cancer.

It is hoped that governments will follow Yukon’s example as awareness of the link between alcohol and cancer is very low and people need to have this information so they can make an informed decision about their drinking habits, and hopefully protect their health.

In September, the World Cancer Research Fund published the latest data from their Continuous Update Project on cancer prevention highlighting what increases and decreases our risk of developing cancer.

Their summary is a very concise, easy-to-read booklet based on the latest evidence on risk factors for cancer. One of their main messages is that one third of the most common cancers could be prevented by a healthy diet, maintaining a healthy weight and being physically active.

Their summary is divided into three sections:

• Strong evidence on what increases cancer risk
• Strong evidence on what decreases cancer risk
• Cancer prevention recommendations

When looking at what increases cancer risk, factors such as being overweight or obese, consuming alcohol, processed meat and red meat are listed as well as a number of other factors. Whilst non-starchy vegetables, fruit,  physical activity, dietary fibre, wholegrain and a number of other factors are listed as reducing cancer risk.

The WCRF end their summary with a list of cancer prevention recommendations as follows:

• Be a healthy weight
• Move more
• Avoid high calorie foods and sugary drinks
• Enjoy more grains, veg and beans
• Limit red meat and processed meat
• Don’t drink alcohol
• Eat less salt
• Avoid mouldy grains and cereals
• Don’t rely on supplements, eat a healthy diet
• If you can, breastfeed your baby

WCRF Continuous Update Project is an ongoing initiative to review global research on cancer prevention focusing on how lifestyle factors such as diet, exercise and weight impact our risk of developing cancer.  Based on these findings the WCRF will update their Cancer Prevention Recommendations which they hope will provide the public, governments and charitable organisations with accurate information on how to reduce cancer risk.

For more information you can download the full summary below or visit the WCRF’s website.

Prostate Cancer UK is seeking to better understand the information and support needs of people who are, or have been, closely affected by prostate cancer across the UK.  Justice Studio has been commissioned by Prostate Cancer UK to undertake research into these unmet needs.

They are interested in hearing from both people who have been diagnosed with the disease and their supporters, such as a partner, family member or carer.

The aim of this research is to understand more about unmet needs in relation to a prostate cancer diagnosis. Unmet needs are defined as those needs that are not being met by the NHS, including a GP or other healthcare provider. The research consists of a survey, as well as face-to-face and telephone interviews with diagnosed people and the people who support them.

Prostate Cancer UK  are particularly interested in hearing from Black African/Caribbean men, gay and bisexual men and their supporters.

If you fit any of the above criteria and would like to take part you can complete the survey here. The survey should take 10 to 30 minutes. Responses are completely anonymous and will directly inform the charity about what support services they can offer in the future and where they focus their campaigning work.

For more information about this piece of work please contact Shirley Ahura on shirley@justicestudio.org

Smashed Screen Films are to produce and direct a touching new short drama exploring love, identity and faith from a black woman’s point of view.  The story will be brought to life through three women of colour, Maia Waktins (writer), Chloe Tai (director) and Dominique Toussaint (producer), alongside co-producer and executive producer Nathan Adabadze.

Alpha and Omega will be set amongst the thriving multicultural epicentre of South London and will follow the story of Imani, a budding Rastafarian artist and health-stall owner, who upon learning of her diagnosis of breast cancer begins to question her faith, her relationship with her partner and what it really means to be a Rasta.

The film explores the conflict Imani has when she is forced to consider man-made treatments which goes against her faith and she has to evaluate her holistic lifestyle. This is a universal story about doubting your strength, facing your fears and the importance of relationships.

The film is inspired by writer Maia Watkin’s loss of her Godfather to cancer last year and coming from a Rastafarian family herself, the script is based on a world she knows very well, giving her great insight to not only bring this story to life but play the lead role with authenticity. Ms Watkin’s credits include starring in BBC’s East Enders and Channel 4’s The Educatoror as well as being a 3-time winner of the Monologue Slam UK.

Through this film Ms Watkins hopes to raise awareness of cancer and its devastating consequences, open up dialogue about how people cope with cancer and promote a better representation and understanding of Rastafari culture.

“I wrote this film first and foremost because I wanted to see untold stories on screen.      Having never seen Rastafari culture explored or represented in a positive light before, and coming from a Rastafari background myself, I wanted to portray a journey of consciousness and understanding of self through film, that is so rooted in the culture.”  Maia Watkins

The Lake Foundation is delighted to see this much-needed film produced. We believe it will provide an  engaging and effective way to raise awareness of cancer within the black community, addressing not only the myths but enabling discussion around some of the challenges that black women face when diagnosed with this serious condition.

You can help bring this story to life by supporting their IndieGogo fundraising campaign. You can also support them with in-kind donations or help promote the great work they’re doing. You can find out more about their work on Facebook and Instagram

“Alpha & Omega is a refreshing new perspective on the universal experience of fear, doubt and acceptance. Told through the eyes of a strong independent black woman, so rarely seen in film, but also entrenched in the Rasta culture barely explored in media, we have to make this film!”

The University of Northumbria would like to say a big thank you to everyone who took part in their survey. The survey is now closed and they are no longer collecting data.

Researchers from the Northumbria University are conducting a new piece of research that will investigate the advice that cancer patients are receiving about physical activity after their diagnosis. They will explore whether the advice given to patients is appropriate for them and their needs. The findings from this work will help inform the development of future interventions to try to optimise the nature of physical activity advice being given to people after a cancer diagnosis.

If you have experience with cancer, you can take part in this important piece of work by completing an online survey. The survey asks participants about their current health, their physical activity habits and about any physical activity advice they received. Most of the questions have multiple choice answers with only a couple asking for further details.

This research has been approved by an institutional research ethics committee. Participation in the survey is completely voluntary, and all answers people provide will be kept anonymous and so no one can be identified from any information they provide.

You can complete the survey here: https://goo.gl/forms/GaAK81TJVu877Tj93  and if you have any questions or would like any additional information please email us and we will contact the researchers on your behalf.

This week Prostate Cancer UK launched their ‘Stronger Knowing More’ campaign which is aimed at black men and puts the spotlight on the fact that black men have a significantly higher risk of developing prostate cancer. Black men have a 1 in 4 chance of developing prostate cancer, which is double the risk faced by all men who have a 1 in 8 chance of developing prostate cancer.

In addition to this increased risk of developing this devastating disease black mean are twice as likely to die from prostate cancer.  Black men have a 1 in 12 lifetime risk of dying from prostate cancer whilst all men have a 1 in 24 lifetime risk of developing prostate.

As a result of these alarming statistics Prostate Cancer UK recognised the importance of ensuring that all black men are aware of their risk so they can take steps to do something about it.

Prostate Cancer UK’s Stronger Knowing More campaign uses positive and empowering portraits of black men from the worlds of sport, politics and the arts as a show of strength against prostate cancer. Former WBA World Heavyweight champion David Haye, Olympic gold medallist, Linford Christie and Labour MP, Chuka Umunna are among the well-known faces supporting this campaign.

Stronger Knowing More is calling on the black community to confront the increased risk of prostate cancer and break down longstanding taboos that have prevented black men from speaking about the disease.

It is not known why black men have an increased risk of developing prostate cancer but genetics is thought to play a role. We can all do something about this by being aware of the symptoms and men acting quickly and visiting their doctor, without delay, if they have symptoms they are concerned about.

For more information about black men’s risk of developing prostate cancer visit Prostate Cancer UK’s website here, view the video below or if you have any concerns you can call their helpline 0800 074 8383.