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Category: Fibroids

Registration is Open: Fibroids Self-Care Webinar Series
BlogFibroids

Registration is Open: Fibroids Self-Care Webinar Series

We are delighted to let you know that registration for our Fibroids Self-Care Webinar Series is now open! Our series starts on Saturday 27th October at 11am AST/4pm GMT with a session led by Le’Nise Brothers, a Registered Nutritional Therapist and the Founder of Eat Love Move.

Le’Nise will deliver a webinar on Fibroids, Diet and Hormones giving attendees the opportunity to learn about the role that hormones play in the development of fibroids and how simple changes to your diet may improve symptoms.

Discounted Early Bird Tickets Are Now Available

Early bird tickets for this webinar are now available and are just $10 (about £8) and you can book your tickets on Eventbrite 

We Have A Special Giveaway Just For You

We’re pleased to let you know that the first 10 people who register for this webinar will be entered into a giveaway and one lucky person will win a copy of the book ‘Flow Fighters – How I Kicked My Fibroids and Heavy Periods to the Curb’ by Holly Bridges.

We’re also delighted to have formed a partnership with OH Services who will be launching their ‘Emotional Impact of Fibroids’ online course in November 2018.  The first 10 people to register for our webinar on 27th October 2018 can claim a £5 discount on the cost of the OH Services course.

Other Webinars in this Series

Other webinars in the series will include:

Session 2: Deciding on the Best Treatment For You, Apryll Chase, Consultant Gynaecologist, 5th December 2018

Session 3: The Importance of Exercise, Relaxation and Me-Time, Candice Bryan, Founder and CEO, Noire Wellness, 23rd February 2019

Session 4: Hair and Body Care for Women With Fibroids, Rachael and Jocelyn, Founders of Afrocenchix, April 2019 (To be confirmed)

Session 5: Dealing with the Emotional Impact of Fibroids, Olivia Haltman, Founder, OH Services, June 2019

Session 6: Our Fibroids Stories – A Time to Share, August 2019

More Information 

We hope that you’ll join us on 27th October for this really interesting online event and if you have any questions, please don’t hesitate to get in touch with us at events@lakehealthandwellbeing.com or visit our Eventbrite page

Be Prepared. Period.

Disclosure: this post contains an affiliate link. Find out more here

Fibrome Info France: Our Story
BlogFibroidsMy Fibroid StoryWomen's Health

Fibrome Info France: Our Story

In today’s blog we are delighted to hear from  Angèle Mbarga the founder of Fibrome Info France. Angèle shares her personal experience with fibroids, explains why she started Fibrome Info France, talks a bit about the situation in France and discusses the excellent work her organisation is doing to support women with fibroids. 

I had a surgery by laparotomy in 2010. In January 2011, when creating the association Fibrome Info France, I had no idea just how vast my job would be. The only thing I was sure of was the absolute need to have a place of healing dedicated to women suffering from uterine fibroids. This shelter will be their place where they would find a sympathetic ear and be able to share their own experience in a mutual aid environment. I had the vision of a modern sisterhood where every woman physically injured and hurt in her inner self, intimacy can henceforth stop and they would be able to talk openly, place a word on her pain without any judgement. My objective was to offer to women what had so badly missed in my time when I had to face fibroids for the very first time. Fibrome Info France is my plea a distress call of a woman wrecked by the violence of fibroids.

My fibroids were out of control, disabling and hemorrhagic.  My symptoms were blood clots with throbbing pelvic pains sometimes. Untimely and chaotic bleedings were my sad daily reality. My life was completely turned upside down. I had no menstrual cycle reference anymore. I had no life anyway. Fibroids were killing me softly. Periods and unusual bleeding got mixed up and caught me in an endless, disturbing and distorted cycle in a completely crazy pace. I was in hell! At office, in meetings, when hanging out with friends, in restaurants, in my own car or in common transportation, anywhere. Always this inopportune and incessant flow of blood gushing from me! There were no sanitary pads that could help me out with stopping this. Fibroids gave me no place for neither private nor professional life. It was like holding a time bomb in my womb with the difference that I had no idea when the explosion would happen.

While recovering from my surgery at hospital, I made a promise to myself to help those women with fibroids issues. They should not face the lack of information about this disease anymore. They should not go through the fibroids complications alone either. Once this idea sprouted in my mind I put all resources and forces I had to make it happen as quickly as possible. And in January 2011, Fibrome Info France was born. Our association assists through our support groups, every year we help over 1500 women to overcome their profound distress caused by this disease. Uterine fibroma is a disease that affects the woman in the depths of her intimacy and in some cases affects fertility. Its development and complications vary from one woman to another. But a widely spread cliché makes one  believe that fibroids are asymptomatic hence do not require any specific care. However, witnesses and S.O.S messages received by our association prove the need for information and support of women severely exposed to this disease which has a strong consequences and significant impacts on their intimacy, their professional and social life.

Uterine fibroma is the most frequent non-cancerous tumor that affects women in childbearing age. It represents also the first cause of uterus ablation in France, over 75000 every year. Physicians who are experienced in the care of this condition are of the opinion that African-Caribbean women develop fibroids at a younger age than the average and are prone to a higher rate of recurrence as well. The specific cases of young women who might likely relapse therefore exposed to repetitive surgeries raises the question of the preservation of the uterus and fertility. As the founder of Fibrome Info France, I assess on a daily basis women’s expectations with regards to this disease in order to have a good match with our actions towards them. The key challenge for our association is the information and awareness of women about the symptoms and complications of uterine fibroids in terms of basic prevention. We also provide tangible and lasting actions to improve the care of uterine fibroids and fight against its banalization.

In 2012, our first awareness video was released as well as our first information campaign. Both were financed by myself. In 2013, with the support of the then Ministry of Women’s Rights and the Regional Council of Ile-de-France, an informational leaflet was published. We also launched our second information campaign. In 2014, in partnership with doctors who support our action we developed and informative and supportive guide for patients and for the rest of the medical corps that are still underestimating the impacts of uterine fibroids as well. Around ten centres fully dedicated to diagnose and to the care of fibroids were opened in several hospitals in Paris and in other French provinces. All of our actions aim to respond to the need for information by women suffering from uterine fibroids and the imperative requirement to guide them on their therapeutic path. Our association will turn 7 on June 30!  To celebrate our achievements and alert the public about fibroids’ impacts we will hold an open house day in our premises. We invite anyone who is keen on acting for women’s health and rights to come and join us in our fight to improve the care of uterine fibroids, for the preservation of the uterus and the fertility of women suffering from fibroids.

Angèle MBARGA
Founder
Fibrome Info France


We would like to thank Angèle Mbarga for sharing her inspirational story with us and applaud her for the fantastic work she has done in establishing Fibrome Info France and providing much-needed support to women in France who have been affected by fibroids. To find out more about  Fibrome Info France you can visit their website or connect with them on social media. 

Facebookhttps://www.facebook.com/Fibrome-Info-France-233050816814726/

Twitterhttps://twitter.com/fibromeinfofr 

Be Prepared. Period

Disclosure: this post contains an affiliate link. Find out more here

My Life With Fibroids
BlogFibroidsMy Fibroid StoryWomen's Health

My Life With Fibroids

In today’s blog post we hear from Silvia who shares her experience with fibroids and explains why she started her blog, Life With Fibroids.

Well, let’s start off with a little bit about me. My name is Silvia and I am married to an amazing man who is so supportive and have an adorable dog who from time to time drives me nuts, but that is okay because I adore him.  I have fibroids and have been living with them for two years and have come to a place in my life where I want to share my story and my personal opinions and connect with others and learn about their stories as well.

I was diagnosed with Uterine Fibroids two years ago officially but have lived with them for just about 6 years now and since then I have done a lot of research but there is still so much more to do, so in no way am I saying I am an expert and I am not a doctor.  I decided to start my website, Life with Fibroids,  to create a space where women of all ages, creeds, backgrounds, religions, and parts of the world could come together and know that having fibroids does not mean that you are alone. Although fibroids is very common it is crazy to think that it is not a very talked about subject for most women and there is really no place to connect with others and ask how they are living with it and going through life with this. I was diagnosed with Uterine Fibroids two ago and they do affect my life they make me have the worst menstrual cycle of my life for example I have more bleeding and the first couple of days is so painful and the cramps sometimes can drop me to my knees. It hurts so much let me just say.

I guess, for me at least, that is the biggest inconvenience and it is so crazy to think that they can develop like they did for me because of the fact that your body can produce too much oestrogen and they can grow over time as well and can cause other problems like infertility if they block the Fallopian tubes and get in the way of implantation but to know that it is on a case by case situation and if you come to find out  that you have them and are worried about that then I would definitely set up an appointment with your doctor and get your situation checked. I did and thankfully they are not going to stop me from getting pregnant but I think for the best option since they have gotten bigger is to get them removed before we try for a baby again since I have experienced a miscarriage due to fibroids and want to avoid any further complications due to fibroids, so that is another reason for me to write this post and try to reach out to those who are in the same situation and be an outstretched hand and let others know you are not alone and I am here for you. I guess I just want to help people share and get connected and help support each other because there are lots of stories like mine but there are also lots of stories that end up with a happy mommy and a happy baby, so like I said it is case by case and if I can help even one person then I think that writing this post and creating my blog, Life with Fibroids, is worth it.

Now let’s get a few things clear about fibroids first:

  1. Fibroids are not cancerous and from what I have come to learn not life threatening, so you can take that stress off your mind right now.
  2. What my doctor has come to teach me is that for every woman’s fibroids are different and can affect them in different ways and with fibroids especially the kind that I have which is Uterine Fibroids is always a case by case situation so in no way am I saying that I know everything about you and your situation so please feel free to write about your story and connect with others.
  3. Fibroids can happen anywhere in the body but the most common fibroid I have come to read about is Uterine Fibroids which is what I have.
  4. Even though many women have fibroids they can go their entire lives without knowing it due to having no symptoms and doctors not having any indication to look for them.
  5. Women who do have them and do have active symptoms can have a variety and cannot have their daily lives affected in any way and then there is the other side of the coin where women have their everyday life come to a standstill and cannot function and then of course there is the middle ground where you have good and bad days but nothing too drastic, which for the most part is where I fall, well for the most part anyway.
  6. My final point on this never-ending list is that for every woman with this diagnosis there is a story and it is different and each and everyone is valuable and important.

So with all that I have said again I just want to say that I created my blog, Life with Fibroids, as a place to connect and share your individual stories and remember that you are not alone and you are one of a kind and that you and I and everyone else living and not living with this is beautiful and amazing. Please feel free to visit my blog, share your stories and help me to connect with others from all over. Thanks for taking the time to read my post and even though I am not the most talented writer I want to share my story and hope that it can help at least one person out there. Thank you again for visiting and taking the time to read my post. At Life with Fibroids I do my best to keep everyone up to date on what is happening with me and my fibroids and try my best to keep it active and hopefully on-going. Have an awesome day and you rock!


Lake Health and Wellbeing  would like to say a big thank you to Silvia for sharing her experience with fibroids, we hope that through her experience you have gained some useful insight into this condition. You can find out more about Silvia at Life With Fibroids

If you have any questions or comments please do leave these in the comments section below. 

Be Prepared. Period.

Disclosure: this post contains an affiliate link. Find out more here

How My Fibroids Brought Me Closer to My Feminine Self
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How My Fibroids Brought Me Closer to My Feminine Self

I remember it like it was yesterday, I was 27 years old living in Washington, D.C. I kept feeling a sharp, somewhat dull ache in my pelvic area. I had never felt anything like it before. It would creep up on me suddenly and out of the blue. At times, it would trigger a sharp pain down my leg. At first I ignored it, as I thought it was just related to my monthly menstrual cycle. I always felt deeply connected to my body and prided myself on trusting my intuition. I decided, it was time for a visit to my doctor.

My doctor, always friendly, always efficient. She ran every test imaginable, we even repeated some twice. Some were painful, others were very routine. I had several smears done, in an attempt to make sure nothing suspicious was missed. After months of tests, exams and being prodded, I was told, “Nothing is wrong with you.” I was relieved but at the same time confused. Why didn’t the doctor know, why isn’t she fixing me, after all that is her job. Back then I obviously gave doctors a little too much power. I have come a long way, as this blog will soon describe.  It didn’t end there, I saw another doctor, this time recommended by one of my mentors. She said, “Jo-Ann, he is the best. When I had my breast cancer, he took care of me and he is the reason why I survived.” I visited him and the results were the same. I returned to my old doctor and once again, she told me there is nothing wrong with me. She suggested over the counter painkillers and at one point intimated that I may depressed. This is when it dawned on me that I have something that they don’t understand. She said, “Yes, you have fibroids, but they do not cause pain. “You are fine,” she continued, “Your blood flow is fine and all looks good!”

I went home and started researching.  I became obsessed, fascinated and even a little in love with my fibroids. I felt like I had to love them in order to understand them, otherwise I would have just been in a perpetual state of frustration. Weird but true, I really immersed myself into this world of uterine myomas, my uterus, my ovaries and widely speaking, my womb. You, see I did not fit the criteria for what doctors generally believe are problematic, therefore I was somewhat sidelined.

A year later at aged 28 I relocated to the UK. I was beginning a new era in my life. I was starting business school, transitioning and looking forward to a new chapter across the pond in Europe. The pain continued, life continued and nothing changed. I decided to visit my GP, perhaps she would tell me something different and she did! She told me I did indeed have fibroids, she mentioned there were many of them, some bigger than others and that based on their position, they were in fact causing pain and creating some discomfort. I felt relieved, she paid attention and asked me the right questions. She was very laid back, she spoke with ease and experience. At one point she suggested I relax and try to get to know more about my body. I heard what she said but I was not truly willing to pay attention. I wanted a quick fix, I needed relief. She explained that fibroids are normal but sometimes they can be a nuisance. She referred me to a gynaecological consultant, in short, in the summer of the year of my 29th birthday I had the fibroids removed via laparoscopic myomectomy. I initially felt the difference! I was lighter, the pain was gone and well, I was happy again.

I forgot about my fibroids until seven years later at aged 36, when I was participating in a duathlon and I felt it, that pain, the one that struck me almost ten years before. I knew exactly what it was and I was overwhelmed with grief and sadness. I visited my GP, this time a different lady, who was somewhat cold and unapologetic. She said, “Yes, you have fibroids but they are normal and you can live with them. I am sorry but we cannot do anything for you. I have women with bigger problems and I think you will be fine.” I went home and I cried, not only was she was lacking in empathy and slightly rude but she completely disregarded my experience. Other women had bigger problems than me, what does that even mean? Yes, of course, I do not have uterine cancer or endometriosis but does this make me less worthy of attention?

After wallowing in self pity for weeks, I decided to contact the lovely consultant who performed my laparoscopic surgery. Can you believe he died? Additionally, I read online that before he died he was involved in a malpractice lawsuit, after performing the same procedure on another woman, who unfortunately died. It is as if everything was against me. I sobbed some more. I was miserable for months.

Then one day, I was online and read about acupuncture. This is probably where I should state that I am a vegan, I have been so for 23 years now. I am very active, I exercise regularly-cycling, walking, hiking, I love being in nature, I tend to think I am positive, open minded and in touch with my body. This is what I thought, until I visited my acupuncturist for the first time. She was also a Chinese traditional doctor. With every visit I learned something new about traditional Chinese medicine, the teas, the pins she stuck in my body and the like. I was fascinated. I kept asking her, “Is this going to work?” She always smiled but never responded, until one day she said, “Everything will work, when you get to know your body.” Was that not what the really nice GP said too? She also said, “You work long hours, you don’t sleep well, despite being a vegan you drink too much coffee, you don’t breathe, you are like a machine, jumping from one thing to the next.” She added,  “You are like a jumping rabbit.” She was right!

This time around I was ready to listen and so I did. I started studying my body, paying attention and tuning in. She taught me how to meditate, how to breathe, she told me to start doing yoga again ( I did it for a year when I was 25 and stopped). She also encouraged me to keep a period diary. I began reading books about my body, my womb and explored how my hormones affect all of me. This then introduced me to the concept of what it means to be feminine. For a long time I thought to be feminine is to a be a woman. Every woman is feminine right? Well, not really, every book I read touched on the pillars of femininity such as collaboration, empathy, patience and vulnerability. Everything I was NOT! And why? Because I was too busy letting life run over me. A mental shift began and I started making connections between my mind, my body- specifically my fibroids and hormones- and connecting to my inner me. I literally tapped into my inner self in a way I had never done before.

I believe that my fibroids were my body’s way of saying you are off, you are out of sync and you need to fix it. In a strange way I believe it was my body screaming for me to connect with my womanhood and all those things that make me uniquely me. Somehow along the way between the career and incessantly doing I lost all of those feminine qualities and it took years of pain, one laparoscopy, a very wise acupuncturist, several doctors and my willingness to surrender to my intuition to arrive at where I am now.

I turn 40 in two months, I still have the fibroids but there is no pain, they have not grown or shrunk and I have learned how to manage them. I also switched careers, started a business, relocated to a new country and have an understanding of my body that I never knew existed. It is quite unbelievable what can happen when one pays attention to all the signs around them.

I honestly believe that this experience was meant to enhance my quality of life. I no longer see my fibroids as these awful tumours lingering inside of me but as reminders of how I should live and what I should focus on. Every woman has a different fibroid story and albeit mine does not include heavy periods and endless bleeding, the mental and emotional burden was heavy. I think my connection to my inner self is one that I never knew existed and has transformed my mindset and life in unconventional and unremarkable ways.

I realise now that the quality of my life is not dependent upon what I do, or how I do it but how deeply connected I am to my body. For a very long time, I thought I knew who I was because I ticked all the boxes. What a revelation, I actually didn’t. If you were like me, looking for relief the first step, does not begin with that doctor’s appointment and it does not end with a yoga class. Instead it begins with you. Like I was told more than once, “Get to know your body.”  And I will add, get to know you!  An exploration of self is the beginning to a curing of the mind, body and spirit!


Lake Health and Wellbeing  would like to say a big thank you to Jo-Ann for sharing her experience with fibroids, we hope that through her experience you have gained some useful insight into this condition.

If you have any questions or comments please do leave these in the comments section below. 

Be Prepared. Period.

Disclosure: this post contains an affiliate link. Find out more here

Is There a Link Between Fibroids and Endometriosis?
BlogFibroidsWomen's Health

Is There a Link Between Fibroids and Endometriosis?

Today we tackle a question that we are asked quite regularly at our fibroids events: ‘Is there a link between fibroids and endometriosis?’

To answer this question, we’re going to look at what research tells us, but first let’s start with a bit of background on endometriosis. You can find out about fibroids on our fibroids page here

What is Endometriosis?

Endometriosis occurs when cells similar to those that line a woman’s womb are found in other parts of the body like the ovaries, fallopian tubes, bladder and stomach. The problem with this is that the cells that line the womb have a specific function which is only appropriate in the womb. The cells that line the womb build up, break down and bleed every month during our period. In the womb the blood has an escape route (the vagina), but in endometriosis the blood from the womb-like cells don’t have an escape route, and this can cause pain, inflammation and scarring.

Endometriosis is a long-term condition that affects millions of women worldwide causing a range of symptoms, such as heavy and painful periods, back pain, constipation, infertility and more. Thus, it has a significant impact on a woman’s quality of life.

Is there a link between fibroids and endometriosis?

When we look at research that has been conducted in this area, there does seem to be a link between fibroids and endometriosis. Firstly, several studies have found that many women with fibroids also have endometriosis, but just how common it is to have both fibroids and endometriosis isn’t clear as it has varied between studies. For example, a study carried out in the US by a team in Stanford in 2010 found that 86% of patients with fibroids also had endometriosis, whilst in 1994 a team in Italy found that just 12% of women with fibroids had endometriosis. Furthermore, three other studies found that 87%, 21% and 28% of women with fibroids also had endometriosis.  So, it does vary from there being a very strong link (87%) to a relatively weak, but significant link (12%).

When we look at the biology of fibroids and endometriosis there is evidence of a link between these two conditions. It has been reported that fibroids and endometriosis have common biological abnormalities that contribute to the development of both conditions. Namely these are defects in molecules called 17B-hydroxysteroid dehydrogenase (involved in hormone regulation) and aromatase (involved in the production of oestrogen). Related to this it is thought that women with fibroids and/or endometriosis tend to have a hormone imbalance having excess amounts of oestrogen in the body which, in both conditions, causes growth of the abnormal cells.

Why is it important to know about this link?

It’s important for patients and doctors to be aware of the link between fibroids and endometriosis so patients can receive the most appropriate treatment. If there is no awareness that women with fibroids are likely to also have endometriosis, patients diagnosed fibroids will be treated for just their fibroids and their symptoms may persist which the doctor and patient may think is due to the treatment being ineffective, but the persistent symptoms could be due to undiagnosed endometriosis. Researchers from the Stanford Study therefore recommend that doctors explore whether their fibroids patients also have endometriosis. Their study did identify helpful clues to identify whether a patient with fibroids may have endometriosis. They found that women who were diagnosed fibroids were more likely to have endometriosis if they:

  • Had pelvic pain that was disproportionate to the size of their fibroids
  • Were infertile

Therefore a good starting point for doctors and patients wanting to explain persistent symptoms after fibroids treatment is to explore whether the two symptoms above are present as this could mean the patient has endometriosis. If we can pinpoint these patients early then steps can be taken to alleviate their symptoms and thus improve their quality of life.

More Information

For more information about endometriosis you can visit Endometriosis UK’s website and for more information about the link between fibroids and endometriosis you can check out the references below.


References

  1. Huang J.  et al. (2010). Coexistence of endometriosis in women with symptomatic leiomyomas. Fertil Steril, Volume 94(2), p 720.
  2. Nezhat C. et al. (2016). Strong Association Between Endometriosis and Symptomatic Leiomyomas. JSLS, Volume 20 (3).
  3. Maclaran K., Agarwal N. and Odejinmi. (2014). Co-existence of uterine myomas and endometriosis in women undergoing myomectomy: risk factors and surgical implications. J Minim Invasive Gynecol, Volume 21 (6), p 1086.
  4. Tanmahasamut P., Noothong S., SangaAreekul N., Silprasit K. and Dangrat C. (2014). Prevalence of endometriosis in women undergoing surgery for benign gynecologic diseases. J Med Assoc Thai, Volume 97 (2), p147.

Be Prepared. Period.

Disclosure: this post contains an affiliate link

Highlights from our Twitter Chat with the Fibroid Forum UK
BlogFibroids Twitter Chats

Highlights from our Twitter Chat with the Fibroid Forum UK

On 14th March, we hosted a fibroids Twitter chat with the Fibroid Forum UK. We had a great time discussing the work of The Forum, how they’re supporting women who have been affected by fibroids and explored some of the challenges women with fibroids encounter.

You can read some of the highlights from this really interesting chat below and if you have any questions for the Fibroid Forum, please do send them an email or drop by their next support group session (all the details are in the chat below).

Be Prepared. Period.

We Publish A New Fact Sheet on Fibroids and Exercise
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We Publish A New Fact Sheet on Fibroids and Exercise

We are so happy to announce the publication of our new fact sheet on fibroids and exercise. This is the first in our new series of fibroids fact sheets which aim to cover a range of topics that you have told us are important to you.

This fact sheet series is a direct result of the findings of our small research project where we explored the needs of women with fibroids. From this work we discovered that there were significant gaps in the information and support available to women and we are on a mission to fill those gaps. We have worked towards this by:

Our fibroids and exercise fact sheet discusses how exercise can help alleviate the symptoms of fibroids and provides readers with simple tips on how to get active without aggravating their current symptoms. We hope that this resource will provide women with useful information that empowers them to take control of their health and take positive steps towards improving their health and wellbeing. You can download the fact sheet in the download section below.

Coming soon….

The next fact sheet in the series will be published soon and this will focus on fibroids and mental wellbeing. This fact sheet will aim to help women identify, understand and address the emotions that may be associated with having fibroids.

Thank yous

We’d like to thank Candice Bryan from Noire Wellness for contributing to this new fact sheet, Way Wive Wordz Publishing, Editing and Tuition for their editing services and FutureSoft for their design work.

We Join Forces with Noire Wellness for a Fibroids Campaign
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We Join Forces with Noire Wellness for a Fibroids Campaign

We are so happy to announce that we’ve joined forces with Noire Wellness to launch a fibroids campaign today, in the run-up to International Women’s Day on 8th March.

The theme for International Women’s Day this year is #PressForProgress and, together with Noire Wellness, we are calling for everyone to #PressForProgress to improve the experience of women with fibroids.

We believe that for progress to be made, there needs to be:

  • Breakthrough research into fibroids and ethnicity
  • Patient insight on the impact of diet and exercise on fibroids
  • A commitment to professional excellence when caring for women with fibroids, who have a family history of fibroids or who have symptoms associated with fibroids
  • Global and local support networks to ensure that women with fibroids never feel isolated
  • Greater awareness of fibroids, its symptoms and impact on women’s lives, particularly the psycho-social impact.

We want all women, particularly women who have been affected by fibroids, to join us in our social media campaign to highlight the change that needs to occur to improve the experience, care, health and wellbeing of women with fibroids.

We’ve created a range of resources you can use to join us in this campaign. These include images for social media, Facebook and Twitter headers, sample social media posts and a media kit. For more information and to download our resources, please visit our campaign page here.

The Power of Partnership Working

We are extremely proud of this collaboration which has brought together two organisations passionate about addressing the issues that women with fibroids face. We believe we are stronger together and can achieve so much more by pooling our resources, expertise and strengths. We hope that this will be the start of many joint health initiatives.

More Information

For more information about this campaign, please visit the campaign page here or send us an email, we’d be very happy to hear from you.

Our Fibroids Twitter Chat with Self Care Activist Laterria Patton
BlogFibroids Twitter Chats

Our Fibroids Twitter Chat with Self Care Activist Laterria Patton

On 21st February we were delighted to host another fibroids Twitter chat. Our featured guest was Laterria Patton.

Laterria Patton is a Self Care Activist who writes a food blog that promotes reproductive health to black women. The blog content utilizes natural self-healing food practices to educate black women who are suffering with reproductive health problems about the hormonal process, and how to keep it in balance.

During our chat we had an interesting discussion with Laterria  about the common challenges that contribute to uterine disorders (like fibroids), how these challenges can be overcome and how women can achieve optimal uterine health through self-healing food practices.

If you missed our Twitter chat, have no fear, you can read the highlights below.

Good to Know: The Mail Online’s Top Fibroids Specialists
BlogFibroids

Good to Know: The Mail Online’s Top Fibroids Specialists

On many occasions women with fibroids have asked us to recommend a good, experienced doctor who specialises in fibroids. We tend to point them in the direction of the two doctors on our Ask the Expert panel, Dr Nigel Hacking and Mr Adrian Lower.

Because we get this question a lot we started looking into whether we can put together a resource of highly recommended doctors and consultants in the UK who have expertise in fibroids. Whilst doing this we came across an article on the Mail Online which we thought would be a good start and be useful to our readers.

The Mail Online spoke to 40 leading gynaecologists and interventional radiologists in the UK and asked them: “If your own nearest and dearest were to need fibroid treatment, to whom would you refer them and why?”

Based on the answers provided the Mail Online put together their top ten fibroids experts cautioning that this is a guide, not a scientific study and there are many more highly-skilled consultants throughout the UK.  Their list is below.

Please note this was put together in 2011 and we’ve therefore updated some job titles.

Mail Online’s Top Ten Fibroids Experts (UK)

Fibroid Expert Ertan Saridogan

Mr Ertan Saridogan, Consultant Gynaecologist, University College Hospital, London

What the Mail Online said:

“Has huge expertise with fibroids and is probably the best in the country for keyhole myomectomy. He’s a delicate surgeon who is kind and has great empathy for his patients. As a fertility expert, he takes exquisite care with nearby structures such as the fallopian tubes, so his patients will have the best possible chance of a successful pregnancy.”


Professor Anna-Maria Belli,  Consultant Radiologist, St George’s Hospital, London

What the Mail Online said:

“Has pushed hard to get embolisation accepted. Technically she’s superb and she’s warm too. Patients love her — she cares about them, takes their views on board and will do all she can to ensure they get the best possible treatment.”


Professor Issac Manyonda, Consultant Gynaecologist, St George’s Hospital, London

What the Mail Online said:

“A fine gynaecologist and an international figure who has distinguished himself  in the field of open myomectomy for large fibroids, and is one of the lead investigators in a  new major trial comparing  myomectomy with embolisation.  He has treated huge numbers  of patients, which he has  followed up over many years with excellent results. Uteruses after his treatment are beautifully neat!”


Mr Alfred Cutner, Consultant Gynaecologist, University College Hospital, London

“A highly-skilled laparoscopic gynaecologist, who would be an excellent choice for fibroids. He’s a warm person who’d do his best to tailor the right treatment for each patient.”


Dr Paul Crowe, Consultant Interventional Radiologist, Birmingham Fibroid Clinic

What the Mail Online said:

“An excellent operator who set up the service in the West  Midlands and does a huge number of fibroid operations that have yielded first-class results. With Paul Crowe, it’s  not just about technical excellence — he is also patient- centred and manages to make them feel they are in the driver’s seat at all times.”


Mr Adrian Lower, Consultant Gynaecologist and Minimal Access Surgeon, Consulting Rooms, London

What the Mail Online said:

“Sometimes he is described as the king of fibroids. He doesn’t work in the NHS, but does everything excellently. His background is in fertility problems and he will remove even large fibroids superbly by keyhole surgery, so his patients will have an excellent chance of pregnancy. He also has a very good bedside manner.”


Dr  Anthony Nicholson, Consultant Radiologist, Leeds General Infirmary

What the Mail Online said:

“One of the leaders in interventional radiology, he is charismatic and popular with patients. He can be counted on  to give unbiased advice. He  works closely with gynaecologists and will always refer patients  to them if he thinks the patient will benefit.”


Dr Woodruff Walker, Consultant Diagnostic and Interventional radiologist, Royal Surrey County Hospital, Guildford 

What the Mail Online said:

“He is undoubtedly one of the pioneers of uterine artery embolisation and has blazed a trail in this country. An acknowledged expert who has done more fibroid embolisation than anyone else, he has achieved outstanding results. Extremely personable, and patients have complete and well-deserved faith in what he does. He won’t push anyone into anything.”


Dr Nigel Hacking, Consultant Radiologist, Southampton General Hospital 

What the Mail Online said:

“Approachable and has done a lot of work extending the availability of interventional radiology both here and abroad. Highly-skilled with the manual dexterity and hand-eye coordination needed. He knows when to embolise and when he’s done enough. This is vital because you want to starve the fibroid of its blood supply, but not damage the supply to nearby structures.”


Mr Adam Magos, Consultant Gynaecologist,  Royal Free Hospital, London

What the Mail Online said:

“He has been in the forefront of developing hysteroscopic myomectomy (where the fibroid is removed via the cervix, using a hysteroscope, a narrow, telescopic camera with instruments attached — there are no abdominal cuts). He also collects and appraises his own results and presents these to peers at meetings, and is a keen researcher. This is the sign of a quality surgeon who is interested in what he’s doing and is open to new ideas.”


The Mail Online also noted these highly recommended experts who didn’t make the top ten:

Mr Andrew Kent, Consultant Gynaecologist  and Minimal Access Surgeon, Royal Surrey  County Hospital, Guildford

What the Mail Online Said:

“Technically a superb keyhole surgeon  in a very high-profile centre,  who operates beautifully. Fibroid patients would be in very safe hands with him.”


Professor Lesley Regan, Clinical Professor, St. Mary’s  Hospital, London

What the Mail Online said:

“A top gynaecologist with a great  interest in fibroids who would do her best for her patients without forcing her views on them. She would put all the options to each patient fairly and then help them to decide.”


Professor Jonathan Moss, Professor of Interventional Radiology, Gartnavel  General Hospital, Glasgow

What the Mail Online said:

“An enormously dedicated and highly skilled radiologist of the highest order  and with the right mindset — which is  that all options should be on the table for all women who are needing fibroids treatment.”


Mr Yacoub Khalaf, Consultant Gynaecologist, Guy’s Hospital, London

What the Mail Online said:

“Has a big fertility practice and will operate on large fibroids by open  surgery, taking meticulous care. A  well-rounded gynaecologist who is totally dedicated to his patients.”


Professor Tony Watkinson, Consultant Radiologist, Royal Devon  & Exeter Hospital

What the Mail Online said:

“Lovely with patients and gives them choices. He will explain what he  knows about fibroids and the alternatives, too. If they then decide on embolisation, he will look after them very well.”


Mr George Pandis,  Consultant Obstetrician and  Gynaecologist, University College  Hospital, London

What the Mail Online said:

“Being a very good gynaecologist is  about much more than how good  you are with a scalpel and telescope.  It is also about how kind you are  and how good you are if things happen to go wrong. He ticks all of these boxes, taking excellent care of his patients.”


We hope you’ve found the above list helpful and we thank the Mail Online for compiling this list.  You can read their original article here