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Category: Blog

Breast Cancer Care’s New Pilot Service PROWESS
BlogCancer

Breast Cancer Care’s New Pilot Service PROWESS

This week’s blog post comes from Ben Langston from Breast Cancer Care. Ben discusses Breast Cancer Care’s new support service, PROWESS, which is aimed at BME women recently diagnosed with breast cancer.
What iPROWESS?
Well, first of all, PROWESS stands for Promoting Recovery, Wellbeing, Equality and Support in Survivorship.
Breast Cancer Care has been working to improve their services and provide more tailored support to women from different ethnic and social backgrounds.  We know that we need to support more women and make services relevant and easier to access.
We’ve talked to lots of women from different ethnic and social backgrounds who‘ve had breast cancer. With the help of all the women we spoke to, we’ve designed a new five-week pilot service called PROWESS which we’ll be delivering in South London between March and July 2015.
The PROWESS pilot service aims to provide information, practical advice and emotional support. There will also be support given by women who have had breast cancer and who have been trained by Breast Cancer Care to help others.

The service is open to anyone who has finished their hospital treatment for breast cancer in the last 12 months. PROWESS will last for 5 half days over 5 weeks (one-half day per week for 5 weeks).

When & Where Will PROWESS Start?

The first 5-day PROWESS service will start in March 2015 and will be held in the Deptford area of South London. All in all PROWESS will be delivered 4 times in 2015, but not all of them will be in Deptford, but other locations in South London too. Carrying out the service 4 times in 2015 will help us understand how good it is and what we might need to change or improve to make sure we can provide this kind of support locally to women all over London and the UK in the future.

What’s Happening Right Now?

We now have four volunteers who’ve been trained to carry out community engagement work. They are Marcia, Nevo, Lorraine and Yvonne. These four amazing ladies are going out into their local communities, visiting different places and spreading the word about the PROWESS pilot service. They’re working hard to recruit BME women onto the pilot, and I have no doubt they’ll do a great job (we’re aiming to find 60 women to take part in the pilot).As we’ve said, the service is open to anyone who’s finished their hospital treatment in the last 12 months. If you, or someone you know might want more information about the service or just chat about it then contact Ben Langston.

Call: 0207 960 3498
Email: ben.Langston@breastcancercare.org.uk

Genesis – A Networking Event Like No Other
BlogNews

Genesis – A Networking Event Like No Other

On Saturday we attended Genesis, an inspirational networking event organised by Bespoke Hairstyles and Almocado which brought together black business owners and professionals for a night of sharing, positivity and empowerment, with the theme being Our Voice Matters.

This was a networking event like no other with everyone genuinely wanting to connect with like-minded people, no hidden agendas, just a willingness to ensure that we begin to create a forum for black businesses, professionals, students and charities to come together.

The evening began with mingling, snacks and the opportunity to view the products on sale by the vendors Almocado and House of Afrika.

Once we’d settled in, the main event began with a lovely introduction from Bespoke Hairstyles and Almocado who spoke about the rationale behind the event, how their businesses started and their passion for bringing all their clients together, clients who are multitalented and would benefit from being connected to each other.

Then it was over to us. Everyone in the room had the opportunity to be heard from invited guests and vendors to the caterers and cameraman. This was a night of inclusion.

We were all given a few minutes to introduce ourselves, put forward one word that encapsulates what success means to us (the most popular word that people  put forward was ‘happiness’ followed by ‘freedom’) and then show the group our happy pose – that thing that we do when we are happy with ourselves (it was great fun seeing all the poses).

We heard from lawyers, IT consultants, social workers, artists, bloggers, vloggers, financial analysts, raw food chefs, architects and many, many more. It was very motivating to hear everyone’s story and surprising to learn that so many people are juggling 9-5 jobs and their own businesses; it was a truly multitalented room of people.

This was a very enjoyable event and we’d like to say a big thank you to Bespoke Hairstyles and Almocado for organising this event and  inviting us to attend, we were truly honoured to be there and look forward to their next event.

Eyo by Abidemi Sanusi – A look at child trafficking and sex slavery
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Eyo by Abidemi Sanusi – A look at child trafficking and sex slavery

We’ve just finished reading ‘Eyo’ by Abidemi Sanusi, a Nigerian author we had the pleasure of meeting at the African Literary Evening.

Eyo is an excellent, but a heart-breaking book that highlights, very vividly, the issue of child trafficking and sex slavery.

The book tells the story of 10-year old Eyo who is born into abject poverty in Nigeria where she lives with her parents and two siblings in the slums on the swampy marshes of the Lagos Lagoon.

Eyo is trafficked to the UK with her uncle to escape life in the slums with promises of receiving an education and bettering her life. Unfortunately, this is not to be as she finds herself trapped with a cruel family as a domestic servant and then sold into sexual slavery.

Because of the subject matter, this book is hard to read but at the same time you just can’t put it down. The story unfolds in a very interesting and captivating way and gives a disturbing insight into this horrible industry.

What struck me about this book was that it really demonstrates the consequence of not addressing the inequalities that exist in the world. At the root of this issue of child trafficking and sex slavery seems to be poverty.

Poverty means that families desperate to break free of the poverty cycle become vulnerable and easily tricked and exploited by those in the industry and become trapped in a world that can be impossible to escape from.

Another thing that struck me from the book was inaction. There were several points in the book where people noticed that something wasn’t quite right with Eyo and could have intervened and saved her but fear of offending or jeopardising their own peaceful life crippled them, leaving poor Eyo to endure the horrors for much longer than she should have done.

Another painful issue in the book was that some of the abuse Eyo suffered was at the hands of family members as well as women who themselves have children.

Even though this book was fiction it tells of the reality that many young people face and something desperately needs to be done about it. At the end of the book, we are encouraged to take action and support organisations like Stop the Traffik and Africans Unite Against Child Abuse. Please do visit the websites of these organisations to find out more about what can be done to help.

This was an excellent book that raises awareness of an important issue and was shortlisted for the 2010 Commonwealth Writers’ Prize.

“….outstanding commentary on the conditions that make life in home countries unbearable, the casual cruelties meted out on strangers as they travel, and the indifference that sustains it all’ – Judging panel on Eyo, Commonwealth Writers’ Prize 2010

This book is definitely worth reading and can be purchased on Amazon

Centric Community Projects’ Women’s Equality Exhibition
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Centric Community Projects’ Women’s Equality Exhibition

On Wednesday, a group of us attended Centric Community Projects‘ Women’s Equality Exhibition in Croydon. This event forms one of a series of nine exhibitions that will cover each strand of equality as defined by the Equality Act 2010.

The exhibition was a comprehensive look at the history of the women’s equality movement starting on the 6th floor of the Norwich Union Building and ending on the 3rd floor.

We started our journey through the exhibition on the 6th floor where we learnt that the women’s equality movement formally started in 1867 with the formation of the London Society for Women’s Suffrage, an organisation that campaigned for women’s rights.

Over the four floors of the exhibition, we were taken through the many campaigns, challenges and victories of the women’s equality movement. Such as:

  • the passing of the women’s property act in 1870 allowing women to own property,
  • the formation of the Women’s Social and Political Union in 1903,
  • the contribution that women made during World War II,
  • the first general election where women were allowed to vote (1929)
  • the moment when women were first allowed to access the legal and accountancy professions (1920)
  • the appointment of the first female minister of state, Barbara Castle the Minister of Transport (1965)
  • Britain’s first female Prime Minister, Margaret Thatcher (1979)
  • Equal pay for women (1985!)
  • The first female Speaker of the House, Betty Boothroyd (1992)
  • The major success of the female genital mutilation campaign with the passing of the Female Genital Mutilation Act in 2003

The exhibition ended with an inspirational look at ‘Women of Authority, Influence and Achievement’. This part of the exhibition put the spotlight on women who are considered to be the “movers and shakers” within their field.

It was nice to see the range of professions that were highlighted – women’s rights activists (Emmeline Pankhurst), politicians (Rt Hon Harrit Harman), humanitarians (Camila Batmanghelijh), scientists (Prof Dame Jocelyn Bell-Burnell), doctors (Prof Dame Sally Davies), nurses (Dame Julie Moore), engineers (Dame Sue Ion), business leaders (Karren Brady) and sportswomen (Clare Balding OBE)

African Caribbean Women and Equality

It was also great to see African Caribbean women highlighted in the exhibition. From the exhibition, we learnt that in 1978 The Organisation of Women of African and Asian Descent was set up. This was the first black women’s organisation in Britain to act on a national level and it acted as the umbrella group for all black women’s organisations.

The exhibition also featured Diane Abbot, the first black woman to become a member of Parliament and Kanya King MBE, a founding member of Net Women, founder of the MOBO Awards and patron of the Horniman Museum.

Women in Science, Medicine, Engineering and Technology

We were pleased to see that the successes of women in science, medicine, engineering and technology were highlighted and were very inspired by the following:

Technology: Dame Stephanie ‘Steve’ Shirley who founded the software company the F.I Group in 1962! But, she had to adopt the name “Steve” to help in the male-dominated business world.

Science: Professor Ann Glover, Professor of Molecular and Cell Biology at the University of Aberdeen and serves as the Chief Scientific Adviser to the President of the European Commission.

Medicine: Professor Dame Sally Davies, a qualified doctor and appointed as the first female Chief Medical Officer in the UK and voted as the 6th most powerful woman in the UK in 2013.

Engineering: Professor Dame Ann Dowling, a mechanical engineer whose research focuses on combustion, acoustics and vibration. She is currently the Head of Department of Engineering at Cambridge University, where she was the first female professor in 1998 and in 2012 she was appointed a non-executive director of the oil company BP.

We had a great time at the Women’s Equality Exhibition which was extremely informative and would like to say a big thank you to Centric Community Projects for inviting us to attend.

The exhibition runs until Friday 21st November. For more information email info@centricprojects.org

Cuba: The Unsung Heroes of the Ebola Outbreak
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Cuba: The Unsung Heroes of the Ebola Outbreak

As the number of cases of Ebola continues to increase we hear about the heroic efforts of western doctors and nurses who have travelled to West Africa to offer their services, but we rarely hear of the sacrifices that countries outside of the west are making. In this week’s blog we highlight the response of the small Caribbean nation, Cuba, who has made a significant difference to the Ebola outbreak.

Cuba is the largest island in the Caribbean with a population of 11 million people and a GDP of $6,051.22 per capita (compared to the UK’s GDP of $39,336.91 per capita). This small nation with limited resources has been leading the effort to tackle the Ebola outbreak, sending more doctors and nurses to West Africa than any other country.

In September, Cuba sent 62 doctors and 103 nurses to Sierra Leone and since then has pledged to send 300 more medical personnel. To date, 256 Cuban doctors and health workers have been sent to Sierra Leone, Liberia and Guinea where they have been treating patients, setting up testing laboratories, helping to develop strategies to stop the transmission of the disease and accurately determining the number of Ebola cases in these three countries.

In addition to sending medical personnel to Africa, Cuba has been training healthcare workers throughout Latin America and the Caribbean on how to deal with Ebola and is currently hosting an Ebola conference in Havana with support from the Pan American Health Organisation and the US.

A response like this is not new to Cuba they have been sending medical personnel to deal with disease outbreaks for years. In 2010 Cuban doctors and nurses helped with the Haiti Cholera outbreak and Cuba has worked in Haiti since 1998. Cuba has also provided medical assistance to war-torn Algeria, hurricane-hit countries in Latin America and the US (hurricane Katrina), and following earthquakes in Chile and Haiti. Today, there are 50,000 Cuban healthcare workers providing assistance to 66 countries.

Cuba’s response to the Ebola outbreak has been so significant that it has won praise from the UN and World Health Organisation.

“Cuba is world-famous for its ability to train outstanding doctors and nurses and for its generosity in helping fellow countries on the route to progress.”

“I am extremely grateful for the generosity of the Cuban government and these health professionals for doing their part to help us contain the worst Ebola outbreak ever known.” – Dr Chan , WHO

Based on Cuba’s size and resources, its response to the Ebola outbreak has been heroic and we applaud them for this and are extremely grateful for their efforts.

The Lake Foundation’s Fundraising Aerobathon
BlogPhysical Activity

The Lake Foundation’s Fundraising Aerobathon

On Sunday, The Lake Foundation held its first annual fundraising aerobathon, to raise funds for our cancer and fibroids information and support programmes.

This event was a 4-hour aerobics session led by the very energetic Eunice Adu-Appiah, health promotion professional and fitness instructor, and attended by a small but dedicated group of supporters.

Eunice led a fun session that worked every body part and muscle (ouch!). The group started off with a warm-up followed by a hip-shaking routine that got our heart rates up and we then moved into circuits and toning and finished up with a lovely relaxation session.

“Sunday was fantastic! I had a great time but boy was it tiring! It was worth it though as I got a good workout and we raised money for a good cause.” – Mary

We’d like to say a big thank you to Eunice for leading the session and to everyone who took part. We raised over £300 and burnt 3,000 calories!

Lupus and Black Women
BlogWomen's Health

Lupus and Black Women

What is Lupus?

Lupus is a chronic (it lasts a long time) disease where the body’s immune system doesn’t function properly and begins to attack healthy cells, tissues and organs.

There are four types of lupus. The most common type of lupus is systemic lupus erythematosus (SLE); it can affect many parts of the body such as the heart, kidney, brain and lungs. The second type of lupus is called discoid lupus erythematosus (DLE) and this affects the skin causing rashes and a change in the colour of the skin. Drug-induced lupus is caused by certain types of medication (for example hydralazine and procainamide which are used to treat heart conditions). It tends to be a mild form of lupus and goes away when the medication is stopped. Finally, neonatal lupus is a very rare type of lupus that affects newborn babies.

It is not contagious, the severity of the disease varies from person to person – it can be mild or severe – and today, patients rarely die from lupus as an improved understanding of the disease and advances in healthcare has meant that patients can successfully manage their condition.

What  Are the Causes?

The exact cause is unknown but it is thought to occur due to a combination of genetic and environmental factors. There are certain triggers that cause someone’s immune system to become activated inappropriately and attack the body. These triggers include infections, drugs, sunlight and hormonal changes. These triggers as well as a genetic predisposition are thought to lead to lupus.

Researchers have found that there are a number of different genes that together dictate whether a person will develop lupus, what type of lupus they will develop and how severe it is.

What are the Symptoms?

Because lupus can affect a number of different organs and tissues, it can cause a variety of symptoms. The most common symptoms are:

  • Joint pain
  • Swelling of the joints
  • Muscle pain
  • Fever
  • Rashes, mostly on the face
  • Chest pain
  • Hair loss
  • Pale or purple fingers or toes
  • Sensitivity to the sun
  • Swelling in legs or around eyes
  • Mouth ulcers
  • Swollen glands
  • Fatigue

Less common symptoms include anaemia, headaches, dizzy spells, depression, confusion and seizures.

The symptoms and the severity of symptoms vary between people. Some sufferers will have episodes where they experience symptoms followed by periods where they have no symptoms whilst others will have symptoms all the time.

Diagnosis and Treatment

Diagnosing lupus is very challenging because recognising the symptoms can be difficult. This is because the symptoms can seem quite vague, are similar to those of a number of other conditions and they may come and go; this makes it hard to pin down what may be causing the symptoms. Furthermore, there is no specific test for lupus and this all means that it can take years for a patient to receive a confirmed diagnosis.

To make a diagnosis doctors have to carry out several tests and they’ll also have to look at the person’s medical history. The American College of Rheumatology has developed the ‘Eleven Criteria of Lupus’ to help doctors diagnose lupus. A person must have four or more of these criteria for a diagnosis of lupus to be made.

Lupus is incurable so when it comes to its treatment patients are typically given medication to help manage their symptoms and are also given advice on lifestyle changes such as avoiding triggers.

Who is at Risk?

Lupus is a fairly rare disease and in the UK it affects just 5 in 10,000 people. It is more common in women with 90% of suffers being women and most of these women are aged between 15 and 44.

Black women and Hispanic women are at a higher risk of developing lupus as are people who have family members with lupus, have taken certain medications and have been affected by specific infections such as Epstein-Barr virus and cytomegalovirus (CMV).

This means that the key risk factors for lupus are:
1. Age
2. Gender
3. Ethnicity
4. Family history
5. Taking certain medications
6. Certain infections

Black Women

Black women are three to four times more likely to develop lupus than their white counterparts and results from the Lupus in Minorities study has shown that black women develop this condition at a younger age, experience more severe symptoms and overall develop more complications. When looking closely at these complications, black women with lupus tend to develop more neurological complications (such as seizures and strokes) and are more likely to develop lupus-related kidney disease.

Researchers are trying to understand why it is more common in black women and why it is more severe. It is thought to be due to a combination of genetic and environmental differences.

The Black Women’s Health Study identified four specific genetic differences that are associated with a higher risk and these were seen in black women with lupus.

As work continues in this area we can begin to gain a better understanding of why lupus is more common in black women and hopefully this will provide information that can help in the development of effective treatments.

For more information about lupus please visit Lupus UK’s website and if you are concerned about any symptoms you may have, visit your GP.

Breast Cancer Awareness Month Ends Today
BlogCancerWomen's Health

Breast Cancer Awareness Month Ends Today

Today is the final day of Breast Cancer Awareness Month and in this week’s blog, we want to end the month by highlighting the key things that women should know about this disease, which are: the signs and symptoms, risk factors, prevention and the screening process.

The Signs and Symptoms

The symptoms of breast cancer can be identified by carrying out regular breast self-examinations. These should be done at least once a month. The aim of the self-examination is to do a visual and physical inspection of your breasts. You can do the visual part in front of a mirror and you should look out for changes in the size, shape and texture of your breasts as well as changes to your nipples (inverted nipple or a discharge).

Once you’ve carried out a visual examination, the next step is to do a physical one where you use the palm of your hands to feel both breasts and your armpit area for any lumps.

If you notice any of the symptoms of breast cancer visit your GP or doctor as soon as possible. It may not be breast cancer but it is best to rule it out.

You can find out more about how to do a breast self-examination in the video below.

The Risk Factors

The two main factors that increase a person’s risk of developing breast cancer are age and family history.

Age: As we get older our risk of developing breast cancer increases. The majority of breast cancers (80%) occur in women who are aged 50 and over.

Family History/Genetics: 5-10% of breast cancers are hereditary. If you have one first-degree relative with breast cancer, this doubles your risk of developing breast cancer, and if you have two first-degree relatives with breast cancer, this triples your risk.

If you have a family history of breast cancer, visit your doctor to discuss your risk and for more information about hereditary cancer please read our recent blog post.

Other factors that have been shown to increase a person’s risk of developing breast cancer include: being overweight or obese; alcohol consumption, hormone replacement therapy; smoking; and oestrogen and progesterone contraceptives.

Breast Cancer Prevention

To reduce your risk of developing breast cancer you should adopt a healthy lifestyle. In particular, you should: limit your alcohol intake, stop smoking, maintain a healthy weight, exercise regularly, eat a diet rich in fruits and vegetables but low in animal fat; and if you have the choice, breastfeed.

Breast Cancer Screening

In the UK all women between the ages of 50 and 70 are invited for breast screening every 3 years as part of the national breast screening programme. Women over the age of 70 can still be screened, you’ll have to contact your local breast screening unit to organise this. In England, the breast screening age is being extended to all women between the ages of 47 and 73.

Breast screening involves having an x-ray of each breast (this is a mammogram) which allows a clear image of the inside of the breast to be developed. This technique is capable of detecting breast cancer at an early stage, much earlier than a breast self-examination.

To find out more about the NHS Breast Screening Programme please visit their website

Now that Breast Cancer Awareness Month has come to an end, remember to remain breast aware throughout the year.

Our Final Cycling Session
BlogCycling

Our Final Cycling Session

Sadly, our final cycling session of the season took place today. We had a great time with Brian from Cycling Instructor leading the more experienced members of the group on a 9 mile ride along Route 21 from Croydon to Catford. This was, once again, a lovely experience. The weather was great, sunny and mild, and the beauty of route was really impressive. Locations such as South Norwood Country Party, the Riverpool Linear Park and Cator Park were some of the highlights of the route and we recommend this route to anyone who is new to cycling. It is mostly off-road, very safe and picturesque.

Whilst the majority of the group cycled along Route 21, the less experienced cyclists stayed at Croydon Arena with Helen from Cycling Instructor to go over the basics of cycling. They had a nice session on maintaining balance, the correct way to get on and off a bike, pedalling and riding independently.

We had a great final session and have thoroughly enjoyed this season which began in August. Sessions were both informative and fun with attendees now more confident with cycling and keen to take up cycling as a hobby. We would like to say a big thank you to the Cycling Instructor and Croydon Council for giving us the opportunity to offer this activity to our community and we hope to hold more sessions in the Spring.

Exercise and Fibroids Prevention
BlogFibroidsPhysical ActivityWomen's Health

Exercise and Fibroids Prevention

We get a lot of questions from women about what they can do prevent fibroids. In this week’s blog, we’ll look at the effect of exercise on the development fibroids.

Fibroids are non-cancerous tumours that develop in or around a woman’s womb. They can cause a number of symptoms including pelvic (tummy) pain, infertility, heavy and/or painful periods, back pain, anaemia, constipation, frequent urination and pain during sexual intercourse.

The exact cause of fibroids is unknown but research does suggest that fibroids are caused by a combination of genetic, lifestyle and hormonal factors. Those most at risk of developing fibroids are black women, those who are overweight, women of childbearing age (particularly women who are 25-45 years old), those with a family history of fibroids and women who haven’t given birth.

Exercise and Risk Reduction

When looking at these factors and trying to understand what preventative steps women can take, exercise seems like a logical factor to explore for two main reasons. Firstly, being overweight increases risk of developing fibroids so a woman can reduce her risk by maintaining a healthy weight through exercise. Secondly, fibroids are a hormonal condition with oestrogen and progesterone playing a role in their development. When we look at similar hormonal conditions that have been widely studied, such as breast and endometrial cancer, exercise has been shown to be beneficial in reducing risk. This is thought to be because exercise has a number of effects on our hormones which ultimately can lead to a reduction in the level of hormones circulating in our body and balancing of our hormones.

What Research Tells Us

A recent small study published in 2013 by Peking University in China looked into the association between physical activity and fibroids. They found that women who participated in moderately intense occupational activity (physical activity at work) had a significantly lower risk of developing fibroids.

In 2006, The National Institute of Environmental Sciences in Washington DC published the results of their research study exploring the effect of exercise on the development of fibroids. This study included 1189 women (734 black women, 455 Whites) aged 35-49. Whilst their study did have some limitations they found that women who did the most physical activity (more than 7 hours a week) were significantly less likely to develop fibroids than those who did the least amount of exercise (less than 2 hours a week). They also found that the association between exercise and fibroids was similar for both black and white women.

Finally, in 1986, the Harvard School of Public Health published their study which compared the prevalence of fibroids in former college athletes (2,622 women) to non-athletes (2,776 women). They found that the non-athletes were at a 40% greater risk of developing fibroids than their athletic counterparts.

Conclusion

Research and theory demonstrate that regular exercise is an effective way to reduce your risk of developing fibroids. By introducing as much exercise as you can into your weekly routine you can make a significant difference to your risk.

The UK’s Department of Health recommends that we do a minimum of 150 minutes of exercise per week; this is a good target to aim for.