On Sunday 14^th June we had the pleasure of delivering a black health awareness workshop at the Right Now Jesus Centre in Catford.  It was wonderful to work with such an enthusiastic, friendly and energetic congregation; it was really a fun two hours, despite the serious topic.

During the workshop we covered type two diabetes, high blood pressure, stroke, heart disease, prostate cancer and fibroids. We talked about what these conditions are, their risk factors and why they are more common in the black community. We also asked the congregation to work in groups to discuss these issues and encouraged attendees to  adopt a healthy lifestyle by eating a healthy  diet and getting active. We went into detail on some of the specific changes that people can make to achieve a healthier lifestyle and finished off the workshop by asking attendees to think about three things that they will change as they work towards a adopting a healthy lifestyle.

This was  really good event and we thoroughly enjoyed spending time with such an engaged audience.

“This workshop was beautifully presented!”

“Excellent, I learnt a lot.”

“Very informative.”

Fifty is a pivotal age. It’s a time when many will be at the peak of their careers, their families will be blossoming and there is a greater understanding of self. It’s also a time when many take stock, analyse their life to date, asses their achievements and start to re-prioritise to ensure that they’re focusing their energy on the important areas in their life. At The Lake Foundation we believe it’s extremely important that this assessment that occurs as we enter a new pivotal decade includes a review of our health.

As we get older our risk of developing a number of diseases such as cancer, diabetes and cardiovascular disease increases so as we get older we must make our health more of a priority. It’s true that the habits we cultivated when we were  younger and the way we lived our lives prior to hitting fifty will have shaped our current health but we can take steps today to improve our health and ensure we are in the best shape possible going forward and more importantly, we are happy.

In essence keeping healthy as we get older means being proactive and focusing on three main areas: changing our lifestyle (if we need to), being aware and making sure we’re up-to-date with all our relevant health checks and screening.

Changing your lifestyle can seem daunting but it needn’t be. Small changes can make a big difference.  What we’re looking for is for you to be more active, eat a healthy diet and maintain a healthy weight. All of which will make a significant difference to reducing your risk of a number of diseases.

When it comes to diet if you’re not already receiving advice for an existing condition we would recommend that you:

• Eat at least 5 portions of fruit and vegetables a day
• Reduce your salt, sugar and saturated fat intake
• Reduce your red meat consumption
• Eat more fish – at least two portions of fish a week including one oily fish (salmon, sardines, mackerel etc)
  • Note: Oily fish is a great source of omega-3  fatty acids which research suggests may prevent heart disease
  • Note:  Adults and boys shouldn’t consume more than 4 portions of oily fish a week  whilst women and girls planning to become pregnant in the future shouldn’t consume more than 2 portions of oily fish a week
• Drink less alcohol
• Eat more fibre, it can help to prevent heart disease,  some cancer  and improve digestive health
  • Examples of food that are a good source of fibre include:  brown rice, brown bread, pulses (chickpeas, lentils etc), fruit,vegetables, porridge and bran based cereals

Another aspect of keeping healthy is to get active and this is especially important as we get older.  Being inactive has been linked to a number of health conditions including cancer, diabetes, heart disease and stroke so by being more active you can significantly reduce your risk of developing these conditions. Exercise also has a number of other benefits such as it strengthens our bones, improves our mood and improves our mobility.

The government recommends that  we do 150 minutes of moderate exercise per week and this can be divided up into 30 minutes of exercise 5 days during the week. Additionally, on two or more days a week our exercise session should include some muscle strengthening exercises that work on all muscle groups (legs, hips, back abdomen, chest, shoulders and arms).

Finally, it’s very important to maintain a healthy weight as being overweight or obese is linked to a number of diseases. Losing weight as we get older can be challenging because our metabolism slows down, i.e. the rate at which we burn the calories from the food we eat slows down. This means that if we continue to eat the same quantity of food that we ate 10 or 20 years ago we won’t be burning the calories as effectively and the excess calories will turn into fat. To combat this we have to look at our portion sizes and make sure we control them. In terms of weight we should all be aiming for a body mass index (BMI) of 18.5 to 24.9.

As we get older we must all endeavour to eat healthy, keep active and maintain a healthy weight. This will ensure that we reduce our risk of developing a number of conditions;  we remain fit and mobile;  we improve our mood and wellbeing and ultimately have a better quality of life.

We are absolutely delighted to have been awarded a Support Group Start-up Grant from Macmillan Cancer Support. This grant will help us reach more of our community and ensure that we can help as many people as possible.

Our support group started in June 2014 thanks to a grant from Croydon Council and it’s facilitated by a trained counsellor, Hazel Williams. The group provides an informal, friendly environment to connect with people who have been affected by cancer, share experiences and learn how to cope with a cancer diagnosis.

Our support group members have found the sessions to be very useful and have said the following about the group:

“The facilitator was very insightful and had a lot of meaningful things to say. She gave me a lot to think about.”

“The relaxation and mindfulness session was really useful.”

“I was feeling very down and really wasn’t going to attend but I am glad that the organisers called me and picked me up. I found the session to be very useful and I am so glad that I came.”

The group meets on the first Wednesday of the month from 4pm – 6pm at 3Space in Croydon. If you’d like more information about our support group or would like to attend please email us at info@thelakefoundation.com or call 07440 146 645.

We’d like to say a big thank you to Macmillan Cancer Support, we really appreciate their support and look forward to putting this grant to good use.

In this week’s blog, Abi Begho discusses her Walk to Work Week challenge.

Last week was Walk to Work Week and I got involved by walking part of my journey to and from work all last week. This was a great opportunity to get some much-needed exercise and I was amazed at just how much I was able to achieve by making some very simple changes to my journey to work.

I started off on Monday 11^th May. I was heading to central London and decided to substitute the 7-minute tram journey from Addiscombe to East Croydon train station with a lovely early morning walk.  This was a great way to start the morning, it took about 25 minutes, and along the way, I had the opportunity to see my neighbourhood in a whole new light; the lovely houses, the cute kids heading to nursery and the shopkeepers getting ready for a day of trading.  When I got to East Croydon Station a quick glance at my pedometer completely shocked me, I had racked up 3,977 steps! Whey hey!

During the rest of the day, I made a conscious effort to walk as much as I could so I walked to meetings, took a walk at lunchtime, walked up stairs and walked part of my journey back home. At the end of the day, a final glance at my pedometer informed me I had walked 12,087 steps! I was very pleased as the recommended number of steps we should take a day is 10,000.

The rest of the week was much the same although some days were not so good. I peaked at 15,173 steps on 12^th May due to a trip to Birmingham that saw me doing a lot of walking as I opted to walk between train stations and skipped the taxi journeys I would normally take and walked to and from my meeting. My low point was a terrible 3,268  steps on the last day of Walk to Work Week. On this day I was working close to home and because I was carrying my heavy laptop I jumped on the tram, but I did walk up 5 flights of stairs!

I really enjoyed my little Walk to Work Week experiment and I’ve decided to introduce more walking into my commute to work. I’ll be skipping the tram and walking to East Croydon station from now on. I’m going to force myself to do 10,000 steps a day.

We’re so excited to once again team up with the Cycling Instructor with support from Croydon Council to provide free cycling sessions over the summer. This is a fun way to get fit and active and can be a journey of discovery of the beauty of south London as we cycle through the many hidden green spaces along route 21.

This group has been organised as part of our drive to improve the health and wellbeing of the black community and it aims to: provide members with the opportunity to learn how to cycle; provide tips on cycling technique; improve confidence in cycling; prepare attendees for road cycling; and introduce an enjoyable way for people to get some exercise.

Last year we had a great time with our sessions being led by very experienced and friendly instructors from the Cycling Instructor. Our favourite sessions were the off-road cycling sessions where we discovered beautiful locations like South Norwood Country Park, the Waterlink Way and Riverpool Linear Park.

We’ll be starting on 3^rd July at 6pm at Croydon Arena.  Please do get in touch if you’d like to join us. You can email events@thelakefoundation.com  to book your place and to find out more. Our leaflet below also provides more details.

Friday is World Ovarian Cancer Day and this gives us the perfect opportunity to focus on a disease that gets very little attention.

In the UK, ovarian cancer is considered to be a rare cancer with 7,000 new cases diagnosed every year.  For those affected the statistics are unfairly bleak with only 43% of patients surviving for at least five years compared to 85% of breast cancer patients.  We can improve this by raising awareness of the signs and symptoms of ovarian cancer and ensuring that women and healthcare professionals take quick action should they recognise the symptoms.

Increased awareness leads to more patients being diagnosed at an early stage and early diagnosis does save lives;  92% of women diagnosed at an early stage will go on to live beyond 5 years.

Black women are less likely to develop ovarian cancer than white women but data does suggest that black women are more likely to be diagnosed at a late stage so raising awareness in the black community is very important.

So, this World Ovarian Cancer Day join the global movement to raise awareness by pledging to tell five women about the symptoms of ovarian cancer.

To sign the pledge and get more information visit the World Ovarian Cancer Day website and for more information about ovarian cancer please visit Ovarian Cancer Action’s website.

We’re currently working on developing a fibroids booklet to address some of the issues that came out of our fibroids survey last year. From the survey we found that:

• There was a general low level of awareness of fibroids amongst participants prior to their diagnosis.
• There was a good level of awareness of the main symptoms of fibroids but a low level of awareness of other symptoms.
• Participants were aware that ethnicity was a risk factor for fibroids but less aware of other risk factors.
• 80% percent of participants stated that they needed information but only 53% said that this was available to them.
• 63% of women said they didn’t feel that they had enough information to make an informed decision about their treatment

In addition to the above some participants stated that their biggest challenge in managing their condition was the lack of information and conflicting information about fibroids. For example, one participant said, “there is not enough information, particularly with regards to surgery alternatives and diet changes.”

What our booklet will cover

Our booklet will provide much-needed information on all aspects of fibroids. It will cover the symptoms of fibroids allowing women to quickly pick up on the possibility that they might have fibroids ensuring an early diagnosis which may mean less invasive treatment, the prevention of unnecessary pain and avoiding loss of fertility. It will also raise awareness of the risk factors and provide information on what changes women can make to their lifestyle to reduce their risk of developing fibroids and it will help women identify whether they are at a high risk of developing fibroids and therefore whether they should be more vigilant about recognizing symptoms and changing their lifestyle to reduce their risk. Finally, it will also cover treatment options so women are aware of what options are available to them.

We appreciate all those who have helped so far

We’re delighted to have had some excellent reviewers work with us. We would like to say a big thank you to Dr Nigel Hacking, Consultant Interventional Radiologist at Southampton University Hospital and Miss Rosol Hamid, Consultant Obstetrician & Gynaecologist and Head of Women Services at Croydon University Hospital for providing very useful and helpful comments and suggestions.  Additionally we’d also like to thank The Brielle Agency for proofreading our work .

We need your help for the final review

Now we are looking for members of the public to read the final draft before it goes off to our wonderful designers, Adinqra, and provide us with feedback on what needs to be improved. If you’d like to help please contact us on info@thelakefoundation.com

As a small charity with limited resources communications and PR can be a challenge, but it is important.  We completely understand the power of an effective communication and PR strategy in helping us reach our community with key health messages particularly around cancer and fibroids, our two main focus areas at the moment. With this in mind when we heard about Find a Cure’s workshop on ‘Communications and PR for Small Patient Groups’ we jumped at the opportunity to attend.

This workshop was held today and didn’t disappoint. It was an excellent workshop with very useful presentations from experts in the field of communication. In the first presentation, delivered by Sorsha Roberts, Online Communications Officer at the AKU Society, we learnt of the importance of social media for patient groups. Sorsha highlighted the statistics around the use of social media stating that a significant number of people were using social media to find health information and that 90% of people who found health information on social media trusted it and would use it. Furthermore Facebook is the fourth trusted source of health information and this is because information is delivered in a way that is less clinical, it’s clear, easy to understand and it’s delivered in a friendly and informal environment.

We then moved on to our next speaker Stefania Rucci from  Say Communications who spoke about ‘Working with the media’. This was a very informative presentation where Stefania started with an overview of some of the challenges small charities face in getting noticed in the media. These challenges included: competition with other health messages, the media having its own agenda which may not align with a charity’s agenda and small charities have fewer resources making it hard to break through in the media.  Despite these challenges it is possible to mount a successful media campaign but it needs some planning and the adoption of some key principles. These include: developing a compelling a story; getting to know your media and aligning your agenda with theirs;  targeting media to ensure high impact and high relevance; positioning your organisation as the expert; and always being ready . Additionally Stefania said it was important to produce great content, understand your audience, understand the different types of media (specialist,  national papers, local papers, magazines, TV, radio, bloggers and social media) and tailor your content to fit different types of media, i.e. be able to tell your story in a different way so it appeals to different audiences.

We were recently asked about breast implants and mammograms and in today’s blog we thought we’d address this.

A mammogram is an X-ray that is used during the breast screening process to detect breast cancer at a very early stage and hence aims to give women with breast cancer the best chance of survival.  During a mammogram X-rays are passed through the breast in order to generate images (radiographs) of each breast. If a tumour, cyst or calcium deposits are present this will be detected as bright spots on the radiographs.

When a woman has a breast implant (breast augmentation/ enlargement), the implant is inserted between her breast tissue and chest muscle or behind her chest muscle.  The implant may make a mammogram less effective at detecting breast cancer as it prevents the X-rays from penetrating the tissue properly and hence distorts the image. This can be overcome by a slight modification in the way in which the mammogram is performed which will allow as much of the breast tissue as possible to be visualised by the x-ray.

If you are due for a mammogram and you have an implant please definitely attend your appointment but  let the breast screening clinic know  beforehand that you have an implant so they are prepared and can screen you appropriately.

If you have a breast implant because you have had a total mastectomy (i.e. both breasts removed) you won’t need a mammogram as all your breast tissue has been removed but following your breast cancer diagnosis and after treatment you will be monitored regularly. If you have had a mastectomy on just one side then you’ll need to have a mammogram of the breast that remains.

We hope this answers any questions you may have on this topic and if you have any more questions please do let us know by leaving a comment below.

In this week’s blog we speak to the very inspirational Adele Sewell.  Adele was diagnosed with breast cancer in 1999 and in 2007 was faced with cancer again when she was diagonsed with ovarian cancer.

Adele tells us about her experience with both breast and ovarian cancer, what she has learnt from her experience and why she thinks the black community is hesitant to talk about cancer.

How was your breast cancer discovered?

My breast cancer diagnosis was quite straightforward. I found a lump in my breast, I went to my GP and was referred for a biopsy, a mammogram and an ultrasound. The mammogram and biopsy were both inconclusive but the ultrasound confirmed it was cancer. I was 35 years old at the time, fit and healthy with no apparent risk factors for breast cancer. I had surgery (a lumpectomy which just removed the cancer plus a margin around it to prevent spread or recurrence). A few lymph nodes were removed from under my arm and as no cancer was found in these I did not have to have chemotherapy, just radiotherapy. Radiotherapy was 3 times a week for 6 weeks. I have been lucky and 16 years later this cancer has not returned. Touch wood and fingers crossed!

How was your ovarian cancer discovered?

The ovarian cancer diagnosis was quite a different story and a rather long road from first symptoms to final diagnosis. It took about 18 months and several visits to my GP before I was finally diagnosed. As a result the cancer was a late stage diagnosis. The symptoms I had started in early 2006 and I was not diagnosed until Sep 2007. The symptoms included urinary frequency, vaginal discharge, sciatica, lower abdominal pain, bloating, constipation. Also other random symptoms such as hiccups and a pain when I pressed my belly button, loss of inches around my hips but gained inches around my belly. This is because while the cancer was causing me to effectively lose weight, accumulation of fluid in the stomach, called ascites was stretching my abdomen.

Do your doctors know why you developed both breast and ovarian cancer?

When the diagnosis of ovarian cancer came the doctors said that people don’t usually get two completely separate primary cancers unless there is genetic involvement. I spoke to a genetic counsellor and agreed to have the blood test which came back showing that I had a mutation in the BRCA2 gene which is supposed to repair damaged DNA and so prevent cancer. It turned out that I had inherited this from my father. BRCA mutations in men can cause male breast and prostate cancer and my Dad died of prostate cancer, as did his eldest brother. My Dad’s cousin died of ovarian cancer in February this year and two of her sisters have had breast cancer, as have my sisters. Two of my Dad’s aunts are also thought to have died of cancer.

What has been the most challenging aspect of your journey with cancer?

Being told that my life expectancy was less than 5 years. Being told immediately after completing treatment that there was a 70 to 90% chance that the ovarian cancer would come back…which it did in 2010 and required further surgery and chemotherapy.

What life-lessons have your learnt from your experience?

Learning that each person is an individual and therefore that statistics and prognosis information will differ from person to person. Learning that it is ok to be vulnerable and to admit that you have fears. Learning that there are a lot of kind and generous people in the world.

What advice would you give to anyone who has recently been diagnosed with breast or ovarian cancer?

Don’t go on the Internet at 2am and search for ‘prognosis stage 3C ovarian cancer. Ask your consultant to tell you about people who have survived despite the odds.

We’ve noticed that the black community are hesitant to talk about cancer, why do think that is and how has talking about your experience helped you?

I have never met another black woman with ovarian cancer and I am sure that I am not the only one. I am not sure why black people are hesitant to talk about cancer. It is as though they are ashamed or embarrassed about it. I don’t know why that would be. I have found it really beneficial to talk to other women who have had breast and ovarian cancer. It is amazing to find that people who come from different walks of life, different ages and experiences find a common thread when they get together and share their experiences. It is very supportive to find others who feel the same way that you do.

Is there anything else you’d like to say to our readers?

I think the Lake Foundation Is a wonderful initiative which will be of great benefit to many. I am happy to still be alive, despite 3 cancer diagnoses, seven years after diagnosis with ovarian cancer and 16 years after diagnosis with breast cancer.

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We’d like to say a big thank you to Adele for speaking to us about her experience. If you have any questions or comments please leave them in the comments sections below and if you’ve been affected by cancer and need someone to talk to, come along to our cancer support group. For more information click here.