We’re so excited to once again team up with the Cycling Instructor with support from Croydon Council to provide free cycling sessions over the summer. This is a fun way to get fit and active and can be a journey of discovery of the beauty of south London as we cycle through the many hidden green spaces along route 21.

This group has been organised as part of our drive to improve the health and wellbeing of the black community and it aims to: provide members with the opportunity to learn how to cycle; provide tips on cycling technique; improve confidence in cycling; prepare attendees for road cycling; and introduce an enjoyable way for people to get some exercise.

Last year we had a great time with our sessions being led by very experienced and friendly instructors from the Cycling Instructor. Our favourite sessions were the off-road cycling sessions where we discovered beautiful locations like South Norwood Country Park, the Waterlink Way and Riverpool Linear Park.

We’ll be starting on 3^rd July at 6pm at Croydon Arena.  Please do get in touch if you’d like to join us. You can email events@thelakefoundation.com  to book your place and to find out more. Our leaflet below also provides more details.

Ovarian cancer can be a very challenging cancer to diagnose at an early stage because the symptoms are hard to recognise as they are similar to a number of non-serious conditions and have been described by many as “vague” and “non-specific” symptoms. Additionally, unlike breast cervical and bowel cancer there is no national screening programme for women because there currently isn’t a test that is accurate, specific and sensitive enough to be used as a national screening test.  This means that the majority of patients are diagnosed with late stage disease which is hard to treat.

This week scientists have published very encouraging data from a large 14-year study that shows that a test based on determining a woman’s CA125 (a protein found in the blood) profile is effective at detecting ovarian cancer. In fact it was found to identify 86% of ovarian cancers. This data could mean that we are one step closer to a screening test for ovarian cancer. The full data from the trial will be published at the end of the year and will tell us whether this test actually detects ovarian cancer early enough to save lives.

One of the lead investigators in this trial Prof Usha Menon said:

“These results are therefore very encouraging. They show that use of an early detection strategy based on an individual’s CA125 profile significantly improved cancer detection compared to what we’ve seen in previous screening trials.”

If the full results at the end of the year show that lives were actually saved through earlier detection of ovarian cancer, this will be one of the biggest breakthroughs in the detection of ovarian cancer and would for the first time enable a significant improvement in survival rates.

Friday is World Ovarian Cancer Day and this gives us the perfect opportunity to focus on a disease that gets very little attention.

In the UK, ovarian cancer is considered to be a rare cancer with 7,000 new cases diagnosed every year.  For those affected the statistics are unfairly bleak with only 43% of patients surviving for at least five years compared to 85% of breast cancer patients.  We can improve this by raising awareness of the signs and symptoms of ovarian cancer and ensuring that women and healthcare professionals take quick action should they recognise the symptoms.

Increased awareness leads to more patients being diagnosed at an early stage and early diagnosis does save lives;  92% of women diagnosed at an early stage will go on to live beyond 5 years.

Black women are less likely to develop ovarian cancer than white women but data does suggest that black women are more likely to be diagnosed at a late stage so raising awareness in the black community is very important.

So, this World Ovarian Cancer Day join the global movement to raise awareness by pledging to tell five women about the symptoms of ovarian cancer.

To sign the pledge and get more information visit the World Ovarian Cancer Day website and for more information about ovarian cancer please visit Ovarian Cancer Action’s website.

May is National Walking Month and organisers, Living Streets, are encouraging the general public to get out of their car, get off public transport and walk everywhere in an effort to get more active this month.

You can get involved in this fun campaign by taking part in the many activities that are planned for this month such asWalk to School Week from 18^th to 22^nd May and Walk to Work Week from 11^th to 15^th May. They have lot of resources to get you started such as a carbon buster calculator, walking report cards, walking tips, posters, flyers and an events calendar. Visit their website for more information.

Get involved for a fun way to get some exercise and improve your health. #WalkThisMay!

We’re currently working on developing a fibroids booklet to address some of the issues that came out of our fibroids survey last year. From the survey we found that:

• There was a general low level of awareness of fibroids amongst participants prior to their diagnosis.
• There was a good level of awareness of the main symptoms of fibroids but a low level of awareness of other symptoms.
• Participants were aware that ethnicity was a risk factor for fibroids but less aware of other risk factors.
• 80% percent of participants stated that they needed information but only 53% said that this was available to them.
• 63% of women said they didn’t feel that they had enough information to make an informed decision about their treatment

In addition to the above some participants stated that their biggest challenge in managing their condition was the lack of information and conflicting information about fibroids. For example, one participant said, “there is not enough information, particularly with regards to surgery alternatives and diet changes.”

What our booklet will cover

Our booklet will provide much-needed information on all aspects of fibroids. It will cover the symptoms of fibroids allowing women to quickly pick up on the possibility that they might have fibroids ensuring an early diagnosis which may mean less invasive treatment, the prevention of unnecessary pain and avoiding loss of fertility. It will also raise awareness of the risk factors and provide information on what changes women can make to their lifestyle to reduce their risk of developing fibroids and it will help women identify whether they are at a high risk of developing fibroids and therefore whether they should be more vigilant about recognizing symptoms and changing their lifestyle to reduce their risk. Finally, it will also cover treatment options so women are aware of what options are available to them.

We appreciate all those who have helped so far

We’re delighted to have had some excellent reviewers work with us. We would like to say a big thank you to Dr Nigel Hacking, Consultant Interventional Radiologist at Southampton University Hospital and Miss Rosol Hamid, Consultant Obstetrician & Gynaecologist and Head of Women Services at Croydon University Hospital for providing very useful and helpful comments and suggestions.  Additionally we’d also like to thank The Brielle Agency for proofreading our work .

We need your help for the final review

Now we are looking for members of the public to read the final draft before it goes off to our wonderful designers, Adinqra, and provide us with feedback on what needs to be improved. If you’d like to help please contact us on info@thelakefoundation.com

An interesting two-week diet swap experiment has been carried out by researchers at the University of Pittsburgh showing the damage a Western diet can cause to our gut. This study recruited  20 volunteers from the USA and 20 from rural Africa and each group was asked to switch diets for two weeks. The African group were asked to eat more junk food (burgers and fries) whilst the American volunteers were asked to eat a low-fat, high-fibre diet. Even though the study was quite a short one the impact of the diet swap was quite significant with the American group showing less bowel inflammation while the African volunteer’s bowel health declined.

This was an interesting study demonstrating the power of our diet in affecting our health, and in this case our gut health and our  risk of developing bowel (colon) cancer with Dr Stephen O’Keefe, from the University of Pittsburgh, saying:

“In just two weeks, a change in diet from a Westernised composition to a traditional African high-fibre, low-fat diet reduced these biomarkers of cancer risk, indicating that it is likely never too late to modify the risk of colon cancer.”

Researchers from the University of Sheffield have published data from the Yorkshire Health Study which has found that obese people fall into one of six categories and to address obesity strategies should be tailored according to which group a person falls into.

The six obesity groups were identified as: young males who were heavy drinkers, middle aged individuals who were unhappy and anxious, older people who despite living with physical health conditions were happy, younger healthy females, older affluent healthy adults, and individuals with very poor health.

The lead researcher for this study, Dr Mark Green said:

“Our research showed that those in the groups that we identified are likely to need very different services, and will respond very differently to different health promotion policies.

“In the future, we hope that GPs will keep in mind these six groups when offering advice to their patients.”
Researchers explained that what would need to be done to address obesity in the different groups would be to encourage alcohol reduction in young males, while for middle aged individuals who are unhappy and anxious an intervention involving increasing exercise mixed with psycho-social counselling could be beneficial. Young healthy females may not need any intervention, researchers said, as their health problems would be corrected naturally on their own. For those in the poorest health group the study showed advice surrounding exercise may not be reasonable and much more modest goals may be needed. For the affluent healthy elderly weight loss could be a priority.

This study is useful as it helps us understand specific, effective steps that can be taken to tackle obesity.

As a small charity with limited resources communications and PR can be a challenge, but it is important.  We completely understand the power of an effective communication and PR strategy in helping us reach our community with key health messages particularly around cancer and fibroids, our two main focus areas at the moment. With this in mind when we heard about Find a Cure’s workshop on ‘Communications and PR for Small Patient Groups’ we jumped at the opportunity to attend.

This workshop was held today and didn’t disappoint. It was an excellent workshop with very useful presentations from experts in the field of communication. In the first presentation, delivered by Sorsha Roberts, Online Communications Officer at the AKU Society, we learnt of the importance of social media for patient groups. Sorsha highlighted the statistics around the use of social media stating that a significant number of people were using social media to find health information and that 90% of people who found health information on social media trusted it and would use it. Furthermore Facebook is the fourth trusted source of health information and this is because information is delivered in a way that is less clinical, it’s clear, easy to understand and it’s delivered in a friendly and informal environment.

We then moved on to our next speaker Stefania Rucci from  Say Communications who spoke about ‘Working with the media’. This was a very informative presentation where Stefania started with an overview of some of the challenges small charities face in getting noticed in the media. These challenges included: competition with other health messages, the media having its own agenda which may not align with a charity’s agenda and small charities have fewer resources making it hard to break through in the media.  Despite these challenges it is possible to mount a successful media campaign but it needs some planning and the adoption of some key principles. These include: developing a compelling a story; getting to know your media and aligning your agenda with theirs;  targeting media to ensure high impact and high relevance; positioning your organisation as the expert; and always being ready . Additionally Stefania said it was important to produce great content, understand your audience, understand the different types of media (specialist,  national papers, local papers, magazines, TV, radio, bloggers and social media) and tailor your content to fit different types of media, i.e. be able to tell your story in a different way so it appeals to different audiences.

We were recently asked about breast implants and mammograms and in today’s blog we thought we’d address this.

A mammogram is an X-ray that is used during the breast screening process to detect breast cancer at a very early stage and hence aims to give women with breast cancer the best chance of survival.  During a mammogram X-rays are passed through the breast in order to generate images (radiographs) of each breast. If a tumour, cyst or calcium deposits are present this will be detected as bright spots on the radiographs.

When a woman has a breast implant (breast augmentation/ enlargement), the implant is inserted between her breast tissue and chest muscle or behind her chest muscle.  The implant may make a mammogram less effective at detecting breast cancer as it prevents the X-rays from penetrating the tissue properly and hence distorts the image. This can be overcome by a slight modification in the way in which the mammogram is performed which will allow as much of the breast tissue as possible to be visualised by the x-ray.

If you are due for a mammogram and you have an implant please definitely attend your appointment but  let the breast screening clinic know  beforehand that you have an implant so they are prepared and can screen you appropriately.

If you have a breast implant because you have had a total mastectomy (i.e. both breasts removed) you won’t need a mammogram as all your breast tissue has been removed but following your breast cancer diagnosis and after treatment you will be monitored regularly. If you have had a mastectomy on just one side then you’ll need to have a mammogram of the breast that remains.

We hope this answers any questions you may have on this topic and if you have any more questions please do let us know by leaving a comment below.

A study published this week in JAMA has shown that vigorous physical activity is better for our health and enables us to outlive those that just take part in gentle or moderate exercise.

This was a large study including 204,542 people who were followed for just over six years. Researchers compared participants who took part in moderate exercise such as gentle swimming, housework and social tennis to participants who engaged in some vigorous activity such as jogging or aerobics. They found that the risk of premature death was 9 to 13 percent lower in those taking part in vigorous exercise.

As a result of their findings researchers concluded that “vigorous activities should be endorsed in clinical and public health activity guidelines to maximize the population benefits of physical activity.”

This study is useful as it helps us understand the type of exercise that we need to take part in to reap the maximum benefit. We encourage everyone to introduce some vigorous activity into their exercise plan.