A big big thank you to everyone who has completed our black hair products survey. We really appreciate you taking the time to provide us with your thoughts and concerns on the research published back in April about the chemicals in black hair products and what we can do to raise awareness and begin to address this issue.

Your feedback has been really useful and  we’ll be exploring how we can take forward your suggestions by continuing our partnership with Tola Okogwu of My Long Hair Journey.

We’re delighted to say that over the past few months we’ve been charting a way forward and are on the cusp of starting a hair revolution! You can be a part of the change by supporting our journey to explore the potential health issues surrounding Afro hair care products. How do we plan to do this? Through a documentary film that aims to demystify the harmful ingredients in black hair products and answer the question once and for all – are our products safe?

To be kept up-to-date, you can sign up to our mailing list here

We’re really excited about this new project and hope you’ll join us on this interesting exploration.

Looking For Organic Black Hair Products?

Check these brands out:

Afrocenchix
Almocado 
Camille Rose Naturals
Pure Goodnes
Root2Tip
Shea Butter Cottage
Shea Decadence
Yaphene
CARA B Naturally – Natural Products for African American babies

And view some more on Amazon – Organic Black Hair Products

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Disclosure: this post contains an affiliate link. Find out more here

OH Services will be launching their four-week Emotional Impact of Fibroids online course on 7th November. This course is aimed at women who have been affected by fibroids, professionals who would like to support and understand their clients better and family members and friends who would like to learn more about fibroids so they can help their loved ones.

The course will be led by Olivia Haltman who is an accredited Integrative Humanistic Counsellor and an Eye Movement Desensitization Reprocessing (EMDR) Therapist.  She is also a member of British Association for Counselling and Psychotherapy (BACP), EMDR UK & Ireland and BAATN (Black and Asian Therapist Network). Ms Haltman has over 10 years experience working in the mental health sector having worked for organisations like Mind and established her organisation to support people who want to develop their lives on a personal level and reach their best potential. Of her approach to tackling mental health issues she says:

“I believe everyone is different, with unique needs and aspirations so I use an integrative approach to apply and integrate the most suitable solutions for my clients. Within my practice, I also apply (where necessary) a holistic approach to help clients enjoy the essential benefits of wellbeing and healing processes.”

The Aim of the Course

This course will empower attendees, enabling them to

• Get an understanding of how fibroids affect your emotions and life
• Create a stepping stone to start a routine to work on their self-care
• Create their own self-care plan
• Learn how to support and understand others with fibroids
• Start a self-development journey to improve their general wellbeing

It will be interactive and include: a lecture, break out exercises, Q & A, guest speakers, home work, hand-outs and a Certificate of Attendance upon attending the full 4 weeks.

Why Four Weeks? 

Usually workshops or seminars are a few hours with very important information, but once these sessions are over many people go back to their normal routine and lose motivation.  With a four week course OH Services will help you start to create a habit and assist you in dealing with what is going on in your life. This is a journey of reflection to explore how your emotions and fibroids are linked.

To give an extra boost to your journey OH Services has added a BONUS week (week 5) a few weeks after the course ends so you can check-in and monitor your progress.

We’ve Teamed Up With OH Services

We’re delighted to have formed a partnership with OH Services. We’ll be hosting a Fibroids Self-Care Webinar Series which starts on 27th October with a session on Fibroids, Diet and Hormones. The first few people who register for our webinar can claim a £5 discount on OH Services’ online course in November.

And, if you’ve already registered for the OH Services course and were one of the first 10 people to do so, you can claim a 10% discount on one of the seminars in our Fibroids Self-Care Series.

More Information

For more information you can visit OH Services Eventbrite page, visit their website or email us

Disclosure: this post contains an affiliate link. Find out more here

At the thirty-ninth regular meeting of the Conference of Heads of Government of the Caribbean Community (CARICOM) on 4-6^th July, leaders made a commitment to tackle non-communicable diseases (NCDs) in the Caribbean.

Six priority areas were endorsed. These included:

• Establishing and maintaining a smoke-free status for the region
• Implementing policies geared to preventing childhood obesity including health-promoting school environments and improving front-of-package labelling
• Promoting the elimination of cervical cancer
• Support for mitigating post-disaster vulnerabilities related to NCDS, particularly nutrition, treatment and care
• Increasing international financing and technical support
• Strengthening accountability through national coordinating mechanisms

Leaders of the Caribbean discussed the upcoming UN High-Level Meeting on Non-Communicable Diseases which will be held in September. The theme of this meeting is: scaling up multi-stakeholder and multi-sectoral responses to the prevention and control of NCDs. It was felt that CARICOM member states should be well-represented at this meeting especially as, in 2007, CARICOM led the way on NCDs by hosting the first ever summit on NCDs.  This put the spotlight on this area leading to NCDs being included on the UN Development Agenda.

About CARICOM

The Caribbean Community (CARICOM) consists of a group of 20 states, from the Bahamas in the north to Suriname and Guyana in the south, working together under four main pillars:  economic integration, foreign policy coordination, human and social development and security. You can find out more about the work of CARICOM here.

More Information

For more information about the 39^th Regular Meeting of the Conference of Heads of Government of CARICOM held in July you can visit their website here or you can watch the videos below.

Opening Ceremony of the Regular Meeting of the Conference of Heads of Government

Closing Press Conference of the Regular Meeting of the Conference of Heads of Government

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Picture Credit: CARICOM

We’re delighted to announce that our July Fibroids Twitter Chat will be with Jenny Rosenberg on 25th July 2018 at 2pm EST (that’s 7pm GMT, or 2pm AST).

Jenny Rosenberg is the Executive Director of CARE About Fibroids and is an internationally recognized leader in health care policy and strategic communications. Mrs. Rosenberg served for more than a decade in senior-level policy and communications positions in the Obama Administration and Congress.

Previously, Mrs. Rosenberg was Director of Communications to former U.S. Surgeon General Dr. Regina Benjamin and former U.S. Assistant Secretary for Health Dr. Howard Koh. ​Her broad experience as a regulator, policymaker and communications expert brings a comprehensive, multifaceted approach to enhancing public awareness over critical public health issues.

CARE About Fibroids is a Washington, DC-based non-profit whose mission is to elevate uterine fibroids as a women’s health issue and drive change. Bringing together many of the nation’s most respected women’s health advocacy and policy-focused organizations to advance solutions, CARE About Fibroids is a catalyst for increased awareness, research and education about uterine fibroids, leading to earlier diagnosis and improved treatment.

Join our #FibroidsChat to find out more about the great work that CARE About Fibrioids is conducting. To take part in the conversation find us on Twitter on 25th July at  2pm (US EST and 7pmGMT ) and use the hashtag #FibroidsChat.

You can find out more about CARE About Fibroids here: www.careaboutfibroids.org and you can follow CARE About Fibroids on social media:

Twitter: @CAREAbtFibroids

Facebook: @CareAboutFibroids

Are you interested in this topic? Then please do sign up to our fibroids mailing list here

Back in December 2017 the European Medicines Agency announced that it had started an in-depth review on Esmya (ulipristal acetate), a drug widely used to treat fibroids. This in-depth review was conducted following four reports of serious injury with three of these patients having to have a liver transplant. After receiving these reports an initial assessment of these cases was carried out and it was determined that Esmya was indeed the cause of the liver damage, therefore the EMA started a more comprehensive review.

The EMA has now concluded its review on Esmya and in June 2018 published new measures to minimise the risk of rare but serious liver injury that could be caused by Esmya. They recommended that the use of Esmya be restricted and that more research be conducted to gain a better understanding of how Esmya effects the liver and whether the measures they have introduced will, in fact, be effective at minimising the risk of liver damage.

EMA’s Safety Measures for Esmya

The specific measures that the EMA has introduced are:

• Esmya should not be prescribed to patients who have liver problems
• A liver test should be performed before a patient starts taking Esmya and if the test is abnormal the drug should not be prescribed
• Patients should have liver tests during and after treatment
• If no liver problems are detected, a single course of Esmya can be used in women who are about to have surgery for their fibroids; Esmya can be used for more than one course only in women who cannot have surgery
• A card should be included in the package for Esmya with information on the risk of liver damage and the need for liver monitoring
• Patients should stop treatment and contact their doctor immediately if they develop symptoms of liver injury, which include tiredness, yellowing of the skin, darkening of the urine, nausea and vomiting
• Patients with questions or concerns about their treatment should speak to their doctor or pharmacist.

More Information

For more information about the EMA’s review, please visit their website here or download their information sheet below.

Keep up-to-date on fibroids news as well as our upcoming fibroids webinar series by signing up to our fibroids newsletter here

Disclosure: this post contains an affiliate link. Find out more here

Lake Health and Wellbeing in collaboration with the Department for Gender Affairs in St Kitts are aiming to provide support to men in St Kitts with chronic diseases such as heart disease, diabetes, cancer, high blood pressure and lung disease. This support will be delivered through a free 6-week self-management course, starting on 2^nd October, that will provide men with the information, skills and knowledge to live well with their health condition.

Our project will focus on men, to ensure that men in St Kitts who suffer from a chronic disease receive the support that they need as research suggests that men are less likely to access health services.

The course being utilised for this project is the Stanford University Chronic Disease Self-Management Program (CDSMP). This is an evidence-based prevention and health promotion program that addresses common issues faced by people with chronic conditions. The program will provide patients with information on appropriate exercise, diet, managing symptoms, medication usage, dealing with side effects and improving communication with healthcare providers, friends and family. Classes will be held at the National ICT Centre on the Bay Road and will be facilitated by trainers certified by the Stanford University Chronic Disease Self-Management Program.

The program has been implemented in 19 countries around the globe showing a number of benefits including:

• Improved wellbeing
• Improved health of patient
• Fewer hospitalisations
• Fewer days spent in hospital

If you or anyone you know is living with a chronic disease or caring for someone with a chronic disease then this course may be of interest to you.

For more information and to register, please visit Eventbrite,  email events@lakehealthandwellbeing.com or call 668 1518.

Want to be kept up-to-date on events like this? Then please subscribe to our newsletter here.

We’re so happy to announce that our June Fibroids Twitter Chat will be with Angèle  Mbarga on 21^st June 2018 at 6:30pm CEST (that’s 5:30pm GMT, or 12:30pm AST).

Angèle  Mbarga is the Founder of Fibrome Info France which she established in 2011 to provide a place of healing dedicated to women suffering from fibroids. Angèle’s personal experience with fibroids motivated her to start Fibrome Info France to fill the gaps in support that she noticed when she was first diagnosed.

Through their support groups, Fibrome Info France supports over 1500 women every year, they assess women’s personal circumstances and then match them with a relevant support plan. In addition to providing support to women, they raise awareness, provide information on the complications of fibroids and are working towards improving the care that women receive.

They released an awareness video in 2012, in 2013 they published an information leaflet in collaboration with the Ministry of Women’s Rights and the Regional Council of Ile-de-France and in 2014 they worked with doctors to create an information and supportive guide for patients.

Fibrome Info France is making a significant difference in France and you can learn more about their work in our upcoming #FibroidsChat. To take part in the conversation find us on Twitter on 21st June at  6:30pm (French time) and use the hashtag #FibroidsChat.

You can find out more about Fibrome Info France here: http://fibrome-info-france.org/

Our new Zazzle online shop is now live (yay!) and we’d be so grateful if you’d check it out.

Our new Shop For Good aims to promote a healthy lifestyle by selling products that remind us all to live healthily. Our shop also helps us to continue to do good in our community with all money raised going towards our public health projects. In our shop you can pick up badges, key rings, t-shirts, mugs and tote bags; more products will be added regularly and we’ll keep you updated on any new products. You can visit our shop here and below are a few of our products:

Our store is international, so our products are available to purchase from many countries as shown below.  Please click on the image below to find out more.

Thank you for your support. It is much appreciated.

We are absolutely delighted to have teamed up with Tola Okogwu, of My Long Hair Journey, to see what we can do to begin to address the issue of harmful chemicals in black hair products.

This issue has persisted for too long and we have to take a stand and do something about it. Before we do that, we’d like to hear from you and would be very grateful if you could complete the survey below, which should take about 5 minutes.

If you have problems with the survey below, you can complete it on Survey Monkey’s website here

We’re delighted to let you know that OH Services will be launching their first set of live online courses. Their first course will be on fibroids and will explore the emotional impact of fibroids. The course will be led by counsellor Olivia Haltman and will run over several weeks. This new course will allow attendees to:

• Look deeper into how fibroids can affect a woman’s emotions
• Explore how they can effectively change their wellbeing
• Focus on themselves and their healing
• Take their emotional awareness to another level

This course is open to women affected by fibroids, friends or family members of fibroids sufferers and health professionals who would like to better understand this issue so they can support their patients.

You can register your interest in taking this online course here  and if you have any questions about the course, please  email OH Services , call them on 00 44 577 565 218 or follow them on Twitter (@OHServices2018)

To find out more about OH Services, you can read our blog post here or visit their website.  You can also listen to our interview with Olivia Haltman about the emotional impact of fibroids by clicking on the link below.

Episode 7: We talk to counsellor Olivia Haltman about the emotional impact of fibroids