Wednesday 25th July, 2018

Today we discuss a recent conference that we attended, the 63rd annual CARPHA Health Research Conference which was held right here is S Kitts.

We love attending health conferences. They’re a great opportunity to discover the latest advances in the field, learn something new and meet interesting people. Since moving to St Kitts about 10 months ago we haven’t had the opportunity to attend any conferences and so when we learnt that the 63^rd Annual CARPHA Health Research Conference was going to be held right here in St Kitts, we jumped at the opportunity and registered immediately and started counting down the days until conference day.  In today’s blog we’re going to share some of the highlights of the conference from our point of view, but first, you may be asking: who or what is CARPHA?

CARPHA – Who Are They?

CARPHA stands for the Caribbean Public Health Agency and they are the only regional public health agency in the Caribbean. They provide strategic direction  in analysing, defining and responding to the public health priorities set out by CARICOM in order to prevent disease, promote health and respond to threats to the public’s health and emergencies. Their programme of work falls in the following categories

• Emergency responses to disasters (hurricanes, earthquakes, flooding),
• The surveillance and management of non-communicable diseases (NDCs) that have reached epidemic proportions such as obesity, cancer, heart disease and diabetes.
• The surveillance and management of communicable diseases (CDs), including HIV / AIDS; re-emerging diseases, like tuberculosis in association with HIV/AIDS; and new communicable diseases that are now endemic in the region
• The surveillance and prevention of injuries, violence and job-related illnesses.
• Contribution to global health agreements and compliance with international health regulations

CARPHA Conference

Every year CARPHA hosts their health research conference which provides Caribbean researchers, at every level, with the opportunity to showcase their work and disseminate their research findings.  This provides the perfect environment to determine how cutting-edge research can contribute to the development of effective evidence-based policies, programmes and practices to tackle the Caribbean’s health challenges.

This year’s conference was the 63^rd conference, making this event the longest running health research conference in the English-speaking Caribbean and it brought together policymakers, researchers, health professionals and public health officials from the Caribbean, Latin America, North America and Europe.

The theme for this year’s conference was ‘Sustainable Health Systems for Economic Growth, Development and Wealth.’ The aim of the conference was to provide an opportunity to raise awareness of Caribbean research that can provide the evidence and information to create stronger health systems in the region.

The conference was a three-day event, packed full of presentations, concurrent sessions, panel discussions, feature lectures, poster presentations and an exhibition, giving attendees an engaging, informative and diverse experience.

Our Conference Highlights

The conference on a whole was excellent, there was something for everyone, but for us certain presentations and pieces of work, really stood out for us. These included:

Assessing the impact of the Barbados Sugar Sweetened Beverage (SSB) Tax on Grocery Store Beverage Sales – with many countries  around the globe introducing a sugar tax it was interesting to hear about the experience in the Caribbean. This presentation summarised the findings, so far, from the introduction of a 10% tax on SSBs in Barbados in August 2015. It was promising to hear that following the tax there was an increase in water purchases, a 4.3% reduction in SSB purchases and a 5.2% increase in the purchase of non-sweetened drinks. It was interesting to note that the decline in SSB purchases was in expensive drinks and there was evidence that consumers were switching to cheaper SSBs.

Diabetes Distress and Diabetes Self-Care in Barbados – this presentation was insightful as we had never come across the term diabetes distress, which refers to the emotional impact of diabetes where patients may experience fear, frustration and guilt. It was interesting learning about this and how promoting self-care and self-management may address this issue.

Obesity and Weight Misperception Among Adults in Eastern Caribbean– this was a very well-presented and engaging talk that explored the extent to which people misunderstand their weight. Researchers found that in their study weight misperception was very common with the majority of people  under estimating their actual weight. This is a problem because it means that people who are overweight or obese don’t realise it, and if people don’t realise they have a problem with their weight they won’t take steps to address this. This leads to people remaining at risk of a number of health issues when they needn’t be. You can find out more about this study here.

Our Voices: Women’s Perspectives on Breast and Cervical Cancer Screening and Treatment in the English-speaking Windward Islands – this presentation really struck a chord with us as we conducted a similar piece of work exploring black British women’s beliefs about breast cancer and their help seeking behaviour. It was interesting to hear that their findings were very similar to what we found around fear, fatalism and stigma

Finally other highlights for us were, being new to the Caribbean, it was just wonderful meeting people, exploring the important health issues in the Caribbean (e.g. NCDs and mosquito borne diseases) and learning about interesting projects like ECHORN, the new Caribbean Cancer Registry Hub and The Seth Fund, as well as innovative methods of care like that being delivered by the Caribbean Cancer Centre Network – a partnered care hub and spoke model.

In Conclusion…

This was three days well-spent and a great introduction into the research being conducted in the Caribbean. We highly recommend this conference to anyone in the Public Health field and we look forward to next year’s conference. Every year the conference is hosted on a different Caribbean island, and we’re also looking forward to the announcement of which of the beautiful islands will host the conference next year.

More Information

To find out more about this year’s conference you can visit the conference website here and you can learn more about CARPHA here

Last weekend, we attended the Black Women’s Conference. This is an annual event organised by The Black Women’s Forum that  aims to provide a safe space to share, empower and engage with women of African,  Asian, Arab and Caribbean descent living in the UK. It provides a forum for open, honest discussion on issues affecting black women.

This year’s conference was the fifth anniversary of the event and the theme of the conference was ‘Celebrating the Achievements of Women of Colour.’ The  program included panel discussions in the morning followed by workshops in the afternoon.

The panel discussions consisted of speakers from a variety of fields with the first panel focusing on black women in the creative and education industry and the second panel focused on black women in sports and business.  You can find out about all the speakers here

We were really inspired by all the speakers who took part in the panel discussions  and it was interesting to note that the message of the importance of our health and wellbeing was a theme that recurred in almost every presentation.

Black women in the business world face a lot of barriers and challenges which were clearly illustrated by the speakers as they shared their stories of racism and sexism. This core barrier of racism has led to loss of opportunity, difficulties in securing investment, daily battles with “the system”, lack of career progression and so much more.  Fighting these inequalities every single day is tough, affects our wellbeing and can thus impact both our physical and mental health.

We applaud the honesty of Imriel Morgan, the Chief Executive of the Shout Out Network and co-host of Melanin Millennials who spoke with passion about the pioneering work that she’s doing in the podcasting world and the challenges she has faced. This has included difficulties getting her podcast onto well-known platforms which lack diversity and seem not to embrace black podcasts and organising the first ever black podcasting festival. Imriel spoke of the frustrations of not being able to access investment despite being an award-winning podcast and then very movingly tried to fight back tears as she told us that being a black female Chief Executive is really tough. Imriel opened up and was very honest about her experience with depression saying “the struggle is real” and spoke about being on anti-depressants.

We have to do something about this. We have to make sure that black business women have all the support that they need to fight these battles and get through them with their physical and mental health intact. One solution that was discussed throughout the day was the need for black women to come together to form supportive networks so that women have a support system and don’t feel alone in the corporate world.

We feel there is much to do in this area and will explore what we can do as a charity to support black business women.

We’re delighted to announce that we have teamed up with Voices for Autism to host our first Autism Health and Wellbeing Conference. This event is aimed at parents, carers and teachers of children with autism and will cover a range to topics to empower attendees with the information they need to successfully care for a child with autism.

On the day we’ll be looking at therapeutic options and the impact of nutrition and physical activity on autism. We’ll also explore autism friendly initiatives and hear personal stories from parents.

Autism is quite common in the UK affecting approximately 700,000 people. It is a lifelong developmental disability that affects how a person sees the world. It also affects how a person communicates with, and relates to other people. It is a spectrum condition which means people with autism have a range of difficulties in common but it affects everyone differently. It can be hard for those caring for a child with autism to find support and advice on how to manage their child’s condition and so organisations like Voices for Autism have been organising a range of much-needed support services.

Our conference aims to connect parents, experts, teachers and carers to create the perfect environment for shared learning.

This conference will be held on Saturday 15th July at the Bernard Weatherhill Community Space in Croydon. More details will be available from April 2017, but please save the date.

For more information please email events@thelakefoundation.com

Saturday was a really exciting day for us as we hosted our first fibroids conference, Fibroid Focus. The theme of the conference was treatment and we aimed to provide an in-depth look at all treatment options including natural options.

The day started with an introduction by our founder, Abi Begho, who welcomed everyone, explained the aim of the day and briefly summarised the work we’ve been doing on fibroids. This work has included conducting a survey to understand the needs of black women with fibroids, forming an expert panel, developing a booklet and organising awareness events.

You can watch a clip of Abi talking about the event here

Exercise and Fibroids

We first heard from Lillian Lartey the founder and CEO of I Want My Body Back. Lillian discussed exercise and fibroids and we learnt that exercise has been shown to be beneficial in reducing the risk of developing a number of hormone-dependent conditions such as breast cancer and hence we expect that it will also be beneficial in preventing fibroids but also in improving symptoms as part of a healthy lifestyle. Lillian explained that stress is an important factor as any benefits of exercise are cancelled out if we are experiencing persistent stress in our lives. Finally, Lillian reminded us that we should be aiming for 30 minutes of moderate exercise a day and that we shouldn’t consistently take part in long bouts of exercise as this can put pressure on our body. Lillian ended with three suggestions on how to move forward:

• Check your lifestyle – how will exercise be a part of your life?
• Choose the right type of exercise for you and avoid stress-induced exercise
• Manage your stress – this is more than just resting but managing your thoughts.

You can watch a clip of Lillian’s talk here, download her presentation in the section below this blog piece, listen to her full presentation here and you can read our blog on fibroids and exercise here.

Diet and Fibroids

Next we heard from Leah Salmon, The Naturally You Coach, who spoke about diet and fibroids. Leah stressed that food is more than something that we eat three times a day because it tastes nice, food is medicinal. To reap the benefits of food and to fight disease we need to have a solid foundation of nutrients for our body to build on. To achieve this Leah advised that we make at least 50% of our diet unprocessed foods. Leah explained that fibroids have been linked to a number of nutritional deficiencies such as vitamin D, magnesium and essential fatty acids.  Leah stated that we can use our diet to prevent the deficiencies that lead to the fibroids or, if we have fibroids, use nutrition to re-balance the deficiencies, build and repair the body and stop the fibroid tumours from growing. Leah then recommended nine foods that can achieve this:

• Irish Moss and sea weed
• Bone broth and oily fish
• Evening Primrose Oil
• Molasses
• Tumeric
• Garlic
• Green smoothies and vitamin C rich food
• Vitamin D
• Water

Leah also warned us about six foods we should avoid:

• Xenoestrogens (growth hormones in commercially reared animals and can thus be found in red meat, poultry and eggs and also BPA, found in some plastics)
• Alcohol and caffeine
• White sugar
• Processed grains
• Trans and hydrogenated fats

Finally, Leah stated that success in this area is all about our mindset and we need the willingness to change, the stamina to commit to a healthy lifestyle and patience.

You can download Leah’s slides below this blog, watch clips of Leah’s talk here and here, listen to her full presentation here and you can read more about diet and fibroids here.

Medical Treatment and Fibroids

We also heard from Rajiv Varma, a consultant gynaecologist at the Nuffield Hospital, who presented on the medical management of fibroids.  Mr Varma first described some of the effects of fibroids such as challenges with fertility, problems during pregnancy and a number of symptoms that affect a woman’s quality of life, but he did stress that most women with fibroids do not experience these problems.

Mr Varma explained the treatment options available and these include:

• Doing nothing (watchful waiting)
• Drug treatments – mainly used to shrink fibroids before surgery or to relieve symptoms
• Procedures
  • Uterine Artery Embolisation (UAE) – cuts off blood supply to the fibroids
• Surgery – to remove the fibroids

Mr Varma then gave us some really good insight and advice on a number of issues:

 NHS treatment vs. private treatment:  He stated that in an ideal world there would be no difference between NHS and private treatment but unfortunately there can be some issues with NHS care such as: lack of choice, long waiting times and limited treatment options. There are a number of benefits though which include: the NHS is better equipped to deal with complex cases,  easy access to supportive services (such as blood transfusions and intensive care),  the consultant is present and other specialists are available.

Second opinions:  Mr Varma explained that we are entitled to get a second opinion and the situations where he would advise that a woman seeks a second opinion are: if you are unhappy with the treatment and management options that have been presented to you; if you lose confidence in your doctor; and if there is poor communication between yourself and your doctor.

Finding the right doctor: he stated that the most effective way of finding the right doctor is to have insider information and nurses are the best people to get information on who the best doctors are.

Herbal Remedies and Fibroids

Patricia Ferguson, a Medical Herbalist and a member of the College of Practitioners of Phytotherapy, then discussed herbal remedies that have been shown to be effective in treating fibroids. These remedies either contribute to shrinking the fibroid or are effective at managing some of the symptoms. They are as follows:

Vitex Berries (or agnus cactus) – act on the pituitary gland and depress oestrogen and progesterone (both of which can stimulate the growth of fibroids).
Shepherds Purse – can be effective in treating heavy menstrual bleeding
Red raspberry leaf – can help control heavy menstrual bleeding and can help shrink fibroids

Nettle leaves- can be effective in reducing heavy bleeding
Yarrow – helps to stop the growth of fibroids
Thuja  – helps to stop the growth of fibroids
Burdock  Root – can improve liver function and may inhibit the growth of fibroids
Milk Thistle – improves liver function and therefore can help the live control oestrogen levels

It was also noted that before taking any of these herbal preparations women should seek advice from a medical herbalist as some of the above shouldn’t be taken if a woman is pregnant or if she is on certain medication.

You can download a copy of the handouts to this presentation below this blog and read about some research on complementary and alternative medicine and fibroids here.

Managing the Emotional Impact of Fibroids

Finally, Olivia Haltman discussed the emotional impact of fibroids and how to manage this. Olivia explained that women may experience a number of emotions when going through their fibroid journey. This starts before the diagnosis with some women experiencing fear of the unknown due to symptoms. There can be a significant amount of anxiety whilst waiting for results and after receiving results, there can be a feeling of loss of control and hopelessness where you feel like you can’t control the outcome. Additionally, the vaginal examination can cause a significant amount of stress particularly for women who have had a traumatic sexual experience in the past.

Once a woman has received a confirmed diagnosis she may feel a fear of the growth of her fibroids and experience some unease about how her employers may respond, for example, missed days from work due to symptoms. Additionally, she may have anxiety over her fertility and then feel overwhelmed by the treatment decision.

The emotional impact may also include loss of focus, mood swings, panic attacks, lack of self-esteem, irrational emotions, fears regarding relationships and severe premenstrual syndrome.

So, fibroids can have a significant emotional impact on women which, in many cases, go unrecognised. These issues need to be addressed so that women can heal and move on.

Olivia provided some tips on how to start dealing with the emotional impact and these were:

• Educating yourself about fibroids – this can be empowering allowing you to make informed decisions about treatment
• Relaxation and breathing techniques
• Ground techniques
• Writing as therapy
• Positive thinking techniques
• Talking to your partner, friends and family
• Talking therapy
• Healthy eating
• Holistic lifestyle

Olivia finished by summarising tips from HysterSisters which were:

1. Don’t play the blame game
2. Don’t dwell on the what if’s
3. Don’t compare yourself to others
4. Give yourself time to heal emotionally as well as physically
5. Don’t underestimate how much your hormones affect your emotions
6. Don’t do it alone
7. Do move on

Conclusions

The event ended with a really good summary from The Lake Foundation’s trustee, Fadzai Marange, who shared a little of her personal experience with fibroids, summarised the talks and appealed to women to follow Leah Salmon’s advice regarding the watchful waiting option i.e. if you have been diagnosed with fibroids and your doctor says: ‘ let’s watch and wait’, don’t be passive during this time, act – adopt a healthy lifestyle and see what you can do naturally. Finally, Fadzai encouraged women to visit their doctor and check whether they have a vitamin D deficiency as this is strongly linked to fibroids.

The Exhibitors

At this event were a  number exhibitors including:

• Gedeon Ricther
• I Want My Body Back
• Nearer Nature
• Noire Wellness
• Pure Goodness
• The Naturally You Coach
• TOHETI
• Wisdom of Osun

Together they:

• Provided information on fibroids;
• Provided information on the support available for women affected by fibroids;
• Provided information on health and well-being programmes;
• Sold health and well-being books;
• Sold natural feminine hygiene products; and
• Sold natural hair and skin care products.

We also had ‘Meet the Exhibitor’ sessions on the agenda giving attendees the opportunity to hear organisations talk about their work.

Thank you

We had a great day and would like to thank everyone who attended, shared their story and for being a fantastic, engaged audience. We’d also like to thank all the speakers for their thought-provoking, informative presentations and all the exhibitors for attending and sharing their information, services, products and knowledge.

Finally, we’d like to thank Black History Walks, Natracare and Noire Wellness for their support.

On Wednesday 4^th May, we attended the first annual Elevate conference. This conference included seminars and an exhibition that aimed to tackle the issue of inactivity in the UK and provide a forum for cross-sector debate on physical activity, health and wellbeing.

The seminar programme was divided into three streams: physical activity for health and wellness; inclusivity: strategies to increase participation; and future performance. We attended the sessions in the health and wellness stream which began with a session on ‘Physical Activity as Preventive Care’.

Speaking at this session was  Dame Sally Davies, Chief Medical Officer at the Department of Health.   Sally Davies started by asking the question:  ‘what can we do to get people to listen to us about physical activity?’ She stated that only 1 in 5 young people between the ages of 5 and 18 are getting their recommended amount of exercise and many adults too are not achieving the recommended amount of physical activity. She stated that exercise is an investment in reducing our risk of a number of diseases such as diabetes, Alzheimer’s Disease and cardiovascular disease, and somehow we need to communicate this in a way that causes behaviour change.

Sally Davies stressed the importance of health professionals in getting the public active and recognised that many health professionals don’t have the training to promote physical activity. She said we are missing an opportunity because 1 in 4 people said they would do exercise if they were advised to do so by a health professional. She said messages can be as simple as ‘just walk’. Additionally, we need to utilise all professionals including teachers and those in the work place and determine how best to use elite athletes as role models. She also explained that we need to ensure we have a safe environment for physical activity so the public feels confident if they decide to go cycling, jogging or running.

We then heard from Justin Varney, the Interim Deputy Director for Health and Wellbeing at Public Health England. Justin started his presentation by stressing the importance of physical activity stating that only 10% of diseases can be prevented by medicine whilst 40% can be prevented by lifestyle changes including being more active.   He also said that physical inactivity is one of the top ten reasons for death in the UK and that adults are 20% less active now than they were in the 1960s. He highlighted the fact that the UK is less active compared to other counties with 63% of the UK’s population being inactive. He explained that one of the challenges in encouraging people to be more inactive is that the benefits are not immediate, it takes years for people to see the benefits and this doesn’t motivate people to get active now.

Justin Varney informed attendees that  Public Health England published their report Everybody Active, Every Day and it provided an evidence-based approach to tackling inactivity with there being four focus areas:  1) Active society – creating a social movement, 2) Moving professionals – activating networks of professionals, 3) Active environments, – creating the right spaces and 4) Moving at scale – scaling up the interventions that make us active. He ended by saying that there is a lot of evidence out there about the benefits of physical activity and what works, and what we need now is to stop writing documents but read them and focus on implementation.

These two presentations set the scene for the rest of the day with presentations and sessions  that followed focusing on examples and ideas on how to get people more active, case studies on the benefits of physical activity (e.g. for cancer patients, diabetics etc) and the role of  technology. The presentations that we found most interesting were:

1. Research and evidence into physical activity and non-communicable diseases by David Terrace of the Richmond Group of Charities. In his presentation David explained that the Richmond Group is a coalition of twelve of the leading health and social care organisations in the voluntary sector and they aim to build on each other’s expertise to get more people active. They worked together on a one year project to map out the work each of their charities do with respect to physical activity and to draw together all the evidence on physical activity so they could develop a joint approach to tackling inactivity.  Two of the key areas they wanted to focus on were training health professionals and addressing the barriers to physical activity.

They carried out some work to examine the relationships between inactivity and long term conditions and their key findings were:
– Even people who are incapacitated want to be active
– Many people felt that exercise and physical activity were “not for people like me”
– The main barriers were: pain, fatigue and breathlessness

They found that what worked in getting people active was:
–  Positive but realistic messages
– Speaking to people’s aspirations
–  Messages coming from a credible person (health professional)
–  Empathy