We are developing a fibroids awareness, information and support programme. The first phase of this work was to understand the needs of women with fibroids and we achieved this by conducting some qualitative research.
The research project explored four areas:
· The level of knowledge of fibroids prior to diagnosis
· Treatment and diagnosis
· The effect of fibroids and its treatment on quality of life
· The availability of support and information
The findings from our work suggested that a significant number of women with fibroids do not have access to the support and information that they require to successfully manage their condition. You can read more about the findings on our blog here or download the full report here: Fibroids_Survey_Summary_Final
The findings of this survey are informing the direction of our work and since the publication of our report we have:
- Formed a Fibroids Ask the Expert Panel
- Published a fibroids booklet
- Hosted our first conference for women affected by fibroids
- Delivered presentations to churches and community groups
- Hosted a regular fibroids Twitter chat
- Created a fibroids blog and news series
- Launched a fibroids social media campaign in collaboration with Noire Wellness
- Contributed to the APPG’s fibroids inquiry
- And, we’re working on a fibroids fact sheet series and organising a fibroids self-care webinar series
You can keep up-to-date on all our work in this area by signing up to our fibroids mailing list below: